[QUOTE=walli6;3880008]Boy - I didn't spell cimetidine wrong once, but 4 times!Well, you're doing better than many of us...I ALWAYS spell solely "soley" and that's an ordinary word, not technical, :D. I only pointed it out to make it easier to "find".
[QUOTE]Anyhow, my daughter was put on antibiotics every month for about 6 months or so, until we said no more. Her doctor was pursuing bladder or urinary tract infections because of her high fevers. Anitbiotics did nothing. As soon as we saw infectious disease he said PFAPA, but was never truly convinced of that because she was too young to tell us about any other symptoms and she never had mouth sores. She has chronic mild anemia and has ever since they started drawing blood. Does that mean anything to anyone?
Yes! Antibiotic treatment for lyme and its coinfections is dependent on what "bug" or "bugs" may be causing the infection...so the treatment and the length of treatment depends on which bug or how many different kinds of bugs are causing the symptoms...from what I've read, one of the strains cycles every 3-4 weeks which may account for the frequency of some of the fevers (that is one reason the timing and duration of the antibiotic treatment is critical). Children who have fevers that don't cycle in this way, may have been infected more than once over a period of time which would throw off the regularity of the recurring fevers.
Many women have chronic yeast, bladder, and urinary tract infections...chronic conditions of this nature go hand in hand with Lyme...I have read that some doctors think that 1/2 of their patients with these conditions have lyme...your ID doc may have been on to something here...but again, I think it is Lyme related.
Some posters on the Lyme board have said that Infectious Disease doctors are the worst when it comes to diagnosing/treating lyme...I'm paraphrasing here, but I think you know what I mean.
It may very well not be Lyme....but I personally wouldn't rule it out. Undiagnosed Lyme can lead to many chronic conditions...arthritis (clicking and popping joints), bowel problems (IBS, celiac), allergies, psychiatric problems (bi-polar is a common diagnosis), cognition problems, sleep disturbances, and possilbly death. It's just too serious a condition to ignore/deny.