Discussions that mention cimetidine

Rare Disorders board

hello all,

my daughter has been diagnosed with PFAPA. She is 2.5 years old. I have done much research on this topic, and have found the article in the Pediatric Journal of medicine, which I carry to all dr appts. There has been only one study on this, and that was in 1987 I believe. The drs. on the study are Dr Alexander R Lawton and Dr Katheryn M Edwards from Vanderbilt University, Dr. Kastner from NIH, and Dr Henry M Feder Jr. from the University of Conn. Health Centers.
I have heard, so don't quote me, there is talk of another study being done within the next two years. If possible, try and contact these drs. I have there email and phone numbers, but am not sure they can be posted on here.

I have opted to go a more natural and homeopathic route for my daughter, we also do chiropractic care. I was not comfortable with administering prednisone, and cimetidine, and knowing that there is no real cure yet, I made this decision. We have seen a difference, and feel comfortable continuing with it.
so, for those of you with children that have these periodic fevers, I feel for all of you, I have been there. It is tough.
One last thought, those of you who work outside the home, check into FMLA ( family medical leave act)
Also, Knowlege is Power, and will bring comfort

take care
mom to chloe

[This message has been edited by moderator2 (edited 09-22-2002).]

Our daughter has recurring fevers as well. They last from 3 to 6 days. They will spike quite rapidly, so my wife has become an obsessive temperature taker when our daughter is sick.

Our daughter has not been immunized, which might allay some other parents' concerns over immunizations and recurring fevers. At least in our case, we know the fevers are unrelated to immunizations. We (parents and doctors) have not noticed any canker sores, though it is hard to examine a young toddler's mouth.

She has been a pediatric infectious disease specialist, who is equally as clueless. (To be fair, they ruled out all sorts of possible causes.) M.D.s sometimes attempt to pass a description of symptoms off as a diagnosis, but if pressed, will admit they really don't know what is going on as far as a cause is concerned.

Her febrile episodes come every 2.5 to 4 weeks, though there was one time recently were she was afebrile for 8 or so weeks. Her fever has gotten to 106. She is getting so used to the fevers that if we are able to get the fever down to 102, she is surprisingly cheerful.

You might want to look at this article:


I'll talk to my doctor about colchicine and cimetidine and see what he thinks. Thanks for the tips.