Hey Chulupa....
I'm still awake. :) Now what you said here helps to explain more to me. I too have hypothyroid/autoimmiune type, (Hashimoto's) When my levels were off, even slightly, I felt thee worst...I mean even my acid reflux was a 10 on a scale of 1-10.... Some ppl say that once their levels became optimal, they can get off the meds, [for AR] and feel fine]. I wasn't so lucky. I have tried to get off of them, and the pain returns, with a vengence too.
About your levels, do you know what they are? Sometimes, [often] our Dr's will tell us that our levels are "perfect", when really they are not. They really just don't know better. I have a pretty good endocrinologist, but she doesn't know everything, I HONESTLY know more than she does about this thyroid disease, because I have researched it inside and out. (I have at least 9 thyroid books, and lived on this computer for at least 2.5 yeaars researching it extensively, as I was just so desparate). She would tell me my levels were "perfect", and I finally started telling her that "well, they may *look* perfect, but I don't feel 'perfect', in fact I feel far from it".....even when my TSH was 1.8. So I'd ask her for an increase, (I was taking only Levothroid then), and she would give it to me. ..."So long as you don't go below the range, 0.2"....okay, fine, I'd tell her. In time I asked her to let me try some Cytomel, [T-3], and that helped me tremendously. I don't think I would be well today without it...I know I wouldn't. That is what helped me become truly well again.
About that pressure on your head, Chalupa, I have had that same symptom, and the [truly awful] severe pain, [but it only lasted a few seconds] behind, [also] my left eye....weird huh? But that was when my levels were still not optimal....so it does make me wonder what your levels really are, hon?
As far as your having all of those PFT's done, and chest x-rays too, that is wonderful news that everything checked out well, a-okay! GREAT!! And your heart tests....I've had all the same done as you too. Also, I really sympathize with you, as I know....it's impossible to work and function with all of that horrible chest pain, and burning, bad breathing, etc. I was luckier than you though, my kids were grown, and even though I hated not working any longer, I can stay home and we live comfortably. I'm grateful for that, but so sorry for you. It's not fair, I know.
I am also wondering....I'm almost sure you've had an endoscopy done already? Have they done any other gastro tests...IE; abdominal ultrasounds, check your gallbladder, everything else....there are so many tests they can do on your digestive system....to make sure that it's not acid reflux, and may be something else?? What happens if you don't take your Prilosec....does the pain become worse?
Please don't worry about the head pressure too much...I swear to you I had the same thing...and I was very worried at first too, and that painful fleeting pain behind my left eye...like in the socket...I about jumped outta my chair whenever it did happen. It for the most part did go away, but do you know that every now and then, it happens again? [not often though]
I take Prilosec OTC also. They give me generic Prilosec at my clinic, but it doesn't seem to do the job at all. Prilosec worked better for me than Protonix. Did you say that you've tried ALL of the PPI's? How bout your diet? Have you cut out coffee, tea's, etc....acidic foods, sodas?
Please if you can...what are your thyroid levels? I'm very curious?
Bless you girl...
Deda
I'm still awake. :) Now what you said here helps to explain more to me. I too have hypothyroid/autoimmiune type, (Hashimoto's) When my levels were off, even slightly, I felt thee worst...I mean even my acid reflux was a 10 on a scale of 1-10.... Some ppl say that once their levels became optimal, they can get off the meds, [for AR] and feel fine]. I wasn't so lucky. I have tried to get off of them, and the pain returns, with a vengence too.
About your levels, do you know what they are? Sometimes, [often] our Dr's will tell us that our levels are "perfect", when really they are not. They really just don't know better. I have a pretty good endocrinologist, but she doesn't know everything, I HONESTLY know more than she does about this thyroid disease, because I have researched it inside and out. (I have at least 9 thyroid books, and lived on this computer for at least 2.5 yeaars researching it extensively, as I was just so desparate). She would tell me my levels were "perfect", and I finally started telling her that "well, they may *look* perfect, but I don't feel 'perfect', in fact I feel far from it".....even when my TSH was 1.8. So I'd ask her for an increase, (I was taking only Levothroid then), and she would give it to me. ..."So long as you don't go below the range, 0.2"....okay, fine, I'd tell her. In time I asked her to let me try some Cytomel, [T-3], and that helped me tremendously. I don't think I would be well today without it...I know I wouldn't. That is what helped me become truly well again.
About that pressure on your head, Chalupa, I have had that same symptom, and the [truly awful] severe pain, [but it only lasted a few seconds] behind, [also] my left eye....weird huh? But that was when my levels were still not optimal....so it does make me wonder what your levels really are, hon?
As far as your having all of those PFT's done, and chest x-rays too, that is wonderful news that everything checked out well, a-okay! GREAT!! And your heart tests....I've had all the same done as you too. Also, I really sympathize with you, as I know....it's impossible to work and function with all of that horrible chest pain, and burning, bad breathing, etc. I was luckier than you though, my kids were grown, and even though I hated not working any longer, I can stay home and we live comfortably. I'm grateful for that, but so sorry for you. It's not fair, I know.
I am also wondering....I'm almost sure you've had an endoscopy done already? Have they done any other gastro tests...IE; abdominal ultrasounds, check your gallbladder, everything else....there are so many tests they can do on your digestive system....to make sure that it's not acid reflux, and may be something else?? What happens if you don't take your Prilosec....does the pain become worse?
Please don't worry about the head pressure too much...I swear to you I had the same thing...and I was very worried at first too, and that painful fleeting pain behind my left eye...like in the socket...I about jumped outta my chair whenever it did happen. It for the most part did go away, but do you know that every now and then, it happens again? [not often though]
I take Prilosec OTC also. They give me generic Prilosec at my clinic, but it doesn't seem to do the job at all. Prilosec worked better for me than Protonix. Did you say that you've tried ALL of the PPI's? How bout your diet? Have you cut out coffee, tea's, etc....acidic foods, sodas?
Please if you can...what are your thyroid levels? I'm very curious?
Bless you girl...
Deda
