Discussions that mention desyrel

Back Problems board


Hi there! I just developed RLS about 2 months ago. I had an anterior lumbar fusion L4-L5 w/cages on June 30 for a collapsed disc. I had a lot of numbness and tingling in my legs prior to surgery. That all cleared up after surgery.

Then the RLS symptoms started. Some during the night while trying to go to sleep then I started noticing it while driving, sitting at the dinner table and working on the computer. It started to drive me crazy to the point of getting up and walking laps around my house. My kids thought I was going looney :eek: I talked to my PCP about this and also talked to my ortho. They both agreed that it is most likely caused by damaged nerves from being pinched or "compressed" (for lack of a better word) while the disc was collapsed. Nerve damage does take quite a long time to heal, from what I've heard. My drs decided to send me on to a neurologist who put me on Nuerontin and Desyrel, thinking these might help for now. I only take one Nuerontin right before bed. I do think it's helping but nothing helps like Vicodin. It helped my RLS sypmtoms by deadening the overactive nerves, that's what I've read about why narcotics help. But anything like Ibuprofen or Tylenol, I can tell makes it somewhat worse. My legs have the constant feeling of wanting to move (the treadmill is great while I'm on it then I get off and the RLS starts right back up) and I also have a lot of cramping feelings, especially at the end of the day when the irritation has been bad that day.

The nuerologist said that he doesn't think it's RLS only because RLS is usually only at night. Which is totally contradicting to what I've read about this. That it depends on the cause of RLS. Since mine is related to damaged nerves from my collapsed disc, it can occur anytime. I'm not so sure I'll stick with the nuerologist... He wants to do an EMG next week. I'm a bit hesitant to do it, but haven't ruled it out yet.

I hope you find some relief for your RLS soon. It's so hard to explain to others about this wacky feeling but it is so real. I think it helps to talk to others who have experienced it.

God bless,