Discussions that mention duragesic

Arthritis board


[FONT=Comic Sans MS]Here is the rest of my story.....

So when I went into meet him he took my full family history and made a 1st diagnose with R/A. Now I alreadyt new I have Von Willebrands Disease which is a bleeding disorder where your bllod doesnt clot. I was so happy at the time to finally have someone yes the pain your feeling is very real. So he put me on Plaquenil 200mg TID for the 1st month and then 200mg QID( I think that 2 times a day) I told him that I was taking perkadans for the pain and of course he wasnt too happy about that, and he was like I"m going to try and get your pain under control so that you dont have to take them, he doesnt presribe any opiates which didnt matter to me because my family doctor will and always prescribe any of that for me whenever needed. So I guess I"m very lucky there. So after about a year of having some really bad flare-up and going back to see the Rhem, he also said that I had Lupus and Sjogrens Syndrome. He said that I was 1st person in Calgary that they have been able to diagnosed with Sjogrens and with a combination of auto immune disease. I'm so happy with my Rhem hes the best, he's the top Rhem here in Alberta Canada and he is also a professor at the Uofcalgary (that's where I'm from) So I had many flare up's and he would put me on a course of predisone for 3 weeks and that would sometime help. But after 2 years of taking the plaquenil I wasnt feeling any btter with my pain even wrose I felt. I had been in the hospital 4 times in 2 years and each stay was over a month or so. I would be on iv morphine every 4 hours at 7.5mg and trust me that only brought my pain down to about an 8. The last time I was in the hospital I was on the same morphine as before. I had gotten a cold which turned into strep and because of the antibotics I had gotten Canaditia in the mouth so bad, the wrose the doc's had ever seen that it had spread to my face and down my throat, so they had to treat that with iv antiboctic's and once they got that cleared up they then trying to get me through this flare-up cause I was in so much pain all the time. I was on 8mg of Morphine every 4 hours on the ***, I could really sleep or walk. So my rhem wanted to try and jump start my system cause it was going into failur. So he decided that nnow the candiada was under control he was going to give me a round of predizone. He order 1 gram of Predisone through IV for 3 days, to try and jumy my immune system back. Well the 1st try of it didnt go so well. I guess the nures ran it a little too fast in iv, she had go through me in about 1 hour and once it was all done. I got this bad taste in my mouth, now you normally do with pred, but this was so strong it was like dirt and metal in my mouth and I felt like I was going to puke. So I called my nurse to give anti nausea med's when she came back I was shaking and convulsing in bed, I was aware of what was going on and I was able to talk and everything but I just couldnt stop shaking and everything. They too my vitals on the manchine that does your b/p and heart rate all at onve and it started to beep and flash lights and I remember seeing my heart beats where at 222 beats a min. So they called in a ER Doc and they gave me benedryl to counter act with the pred and I ended being ok but I had really bad shakes for about a week or so. So I spent over 2 months in the hospital and by the end that's when they introduced me to MS and Luquid Morphine. I also the whole time in the hospital and well always smoked pot, and that helps alot with pain and to be happy and to eat. So I got discharged and I was on MS Contin and Liquid Mprhine and Preajadans for BT pain. So I was starting to get better a little bit but I started having problems eating felt like I was going to be sick everytime I ate so I just started to eat or well drink power shakes they where the only that I could keep down. I had lost over 45 pounds in 6 months. I was 110 pounds and I was down to 80 pounds and that's when I went to see a GI and I found out I also have Celiac disease. That was just 2 years ago. I have been the hospital 2 more times since then I always am in for a month or so. I have been on MS Contin and Liquid Morphine and Preakan's and smoking pot non stop for over 2 years. I also switch sometime to the Duragesic patch to give the MS Contin a break. So here I am now....I'm a canadain citizen and I have fall in love with a Man from FL and I have moved down here and the weather sure has helped I have been living here for over a year. But I always go back home to canada to see my doctors cause man I have read what you guys have to go through with you doc's here gezzz I feel for you. I get all my med's shipped from Calgary that's my home in canada. Well I think that's all for now I'm sure I will write some more later like all the med's I take the stregth, how my pain is on it and what not. I want to learn more about my med's I already do know a lot about them but I want to learn more. Also I need to talk to ppl just about life and liveing with pain. Oh ya one more thing that I forgot to add, was that because I wasnt diagnosed with all my illnesses when it started when I was 14 or 15, my spinal cord is all messed up too now. If they would have knowen or cared about what I had when I was a teen they could have put me in a back brace to help my spine grow straight but of course this didnt happen, so now my lower part of my spine isnt straight at all its 45% out of aligement and now its too late to try and straighten it because I have stopped growing. So now I have major back problems and major back pain and I will have to go to a chrio now for the rest of my life. One thing that I'm so lucky and happy about is that my Rhemy is such a awesome doctor and a professor too he was able to refer me to a friend of his who is the top chrio in Alberta Canada and is knowen for his work and also his resreach that is done all over the world in the medical coummunity. Cause I wouldnt just let anyone just touch my back cause I have heard and my mom has been to a bad chrio that messed her back up even more. My chrio is so sweet, in fact all my doctors now that I have found since I got diagnosed are almost like friends to me. My chrio even took time out of his day to come and give me back adjustments every 2nd day whenever I'm in the hospital and it doesnt get paid for it, he just does it out of the kindness of his heart and well cause all my doctors say I'm a very special case which I guess can be nice in a way but can also make you feel a little depressed cause you know that your kind of like a geunie pig because none of my doctors have ever had a patient with all these disease's so for them I'm a major learning tool for them....lol....I hope to hear from someone again soon. I would like to talk more about different pains med's and the ones I'm on now. As well stories to share with one another...and anything that could help me feel better...

Talk to you soon...
Lisa[/FONT]
:angel: