Discussions that mention duragesic

Back Problems board

[FONT="Arial Narrow"][SIZE="3"][COLOR="Navy"]Hi Ladybug,

I am so sorry it has taken me days to post, please forgive me, I promise I'll be a better spiney friend :D in the future. This week has been so crazy for me in so many ways...I so wish we were neighbors, then you could just come over for coffee and chat, but I guess this message board is the next best thing...our fellow spineys are wonderful people that truly know how we feel everyday :angel:.

My son, little E, woke up last friday with the flu, despite getting his flu shot last fall, so friday was rough...and I had already planned his birthday party for saturday, I wanted to cancel b/c I didn't want my entire family to catch the flu bug but my mom convinced me otherwise...little E was also feeling better on saturday but they say hindsight is 20/20 for a reason...LOL...we had his party as scheduled and everything was fine until he threw up all over my hubby while we were eating cake...later that evening my hubby got the flu, I woke up sunday morning with it and by monday evening my entire family had caught the NASTY flu bug...we all agree that it's the worse flu we've ever had.

I put my first duragesic patch on saturday evening at 10pm and by 12:30 am I felt heavily sedated, so much so I had to go to bed. By sunday evening the flu symptoms had subsided and that's when I started to notice the side effects of the patch...from sunday evening to wednesday afternoon I was experiencing extreme weakness - when I would stand up I would feel like I was going to pass out, no energy to do even the simpliest things like get a glass of water, or even drink a glass of water, tiredness - I have never been so tired before, not even when my son was an infant, it was an odd tiredness, it was more of a drugged feeling, I couldn't stay awake, sick - I was so sick to my stomach, usually only when I was sitting or standing, I was fine as long as I was laying down, I couldn't eat either but I was very thirsty, I craved cold water so I drank a lot of it...I lost 8 pounds in 4 days...my mind was also a mess (it still is), the fentanyl from the patch made my mind mush, I couldn't begin to think of comprehending anything...it was weird...but every day I have felt a little better...I still have a hard time with eating and feeling sick but I'm working on it....the patch definately controls my back pain better than the oxy did so I have some hope for the future...up until today my pain level has been about a 5 on a pain scale of a 1-10 but today my pain has been about an 8 again...I change the patch every 3 days and today is day 3 so sometimes on day 3 my pain can increase b/c apparently the patch isn't as effective, alot of patients change their patches every 48 hours instead of every 72 so when I see my dr on March 14th that may be something we discuss but I don't want to jump the gun, to be honest I can't imagine an increase at this point...I saw my dad last week, and I haven't seen him since Christmas, he told me I was wasting away into nothing...he's right, I'm losing way too much weight...Tuesday night I hadn't really ate anything except some applesauce since Saturday and I couldn't force myself to eat anything mainly b/c I didn't feel good and also b/c I never have an appetite, my husband got really angry at me and told me I had to eat or I would end up in the hospital...I knew he was right and I didn't want that to happen so I choked down some saltines...since then I have made an effort to eat something everyday, the good thing is I have been drinking a lot of water and ice so I'm hydrated. It has been a big adjustment, let me tell you.

I did want to tell you that the neurosurgeon I saw last Monday now seems to think that there's a piece of the bulging disc at L1 floating around in my lumbar area...which would mean the disc is no longer bulging, right? Wouldn't that mean it's ruptured? That may explain my pain. I'm still not letting him do the fusion if he insists on taking me off pain meds beforehand, and there is no way I will ever change my mind, in fact, this lets me know how stingy he would be after surgery with pain meds...nope...if I've learned anything from this journey, it's to be wise. However, I am wise enough to know that I need to find a neuro or ortho surgeon to fix my back in the near future before my back problems/pain gets too out of my control...hence my next issue...
I also learned another great piece of info late this week. I have been trying, very professionally trying to obtain a copy of my records from my first neurosurgeon, b/c without those records no other surgeon is going to be willing to do further surgeries on my back. The last letter I sent his office was sent by certified mail and my records show his office received my letter on Jan 30th but as of this past Monday I had not heard back from them or received my records, so I called his office yesterday. Guess what? His assistant is now telling me they lost my file. She told me she would call me once she found my file. These people have made up every excuse under the sun not to give me my records, but they must be getting scared b/c another surgeon just requested them. I find it extremely hard to believe they lost my file...I don't understand why they are trying to keep what is legally mine from me. This neuro won't fix my back, even though he knows I need more surgery, but his assistant won't give me my file so another surgeon can fix it for me....I don't understand...there was never any problems between me and my surgeon...I don't care for his nurse or his administrative assistant but I have been professional with them even though they haven't always been the same to me...in my last letter I threw in how I would like a copy of my records as my neuro is legally obligated per HIPAA to send me a copy...this doesn't seem to matter to my neuro, which is surprising b/c he is professional and so is the group he works for...do you have any suggestions? The bottom line is I need my records before another surgeon will agree to attempt to fix my back through surgery.

What has been going on in your life Ladybug? I feel like I've been asleep for a week and need to catch up on everything. I know in one of the post I read a few days ago you mentioned a bad spell you were going through, tell me about that...and how the heck do you do it without pain meds? In so many ways I admire you for that, even though it's not your choice at this point, but at the same time I know how tough it has to also be for you. You are in my thoughts and prayers and have been all week, even when I couldn't think straight to let you know it...lol. I can't wait to hear back from you :). I've missed you!

Please disregard any misspelled words or crazy sentences, my brain is still on the mushy side :dizzy:

Take care,
[FONT="Garamond"][SIZE="3"][COLOR="Indigo"]Hello Ladybug :wave:,

I haven't seen you online or heard from you in a few days...is everything okay? I hope your back problems and nerve pain are not causing you more pain than normal.

I honestly hope I haven't heard from you because you've felt GREAT the last few days and have been out and about enjoying it :).

Unfortunately, I have some not-so-good news to report :(...since last Friday, which was basically when I resumed living again after being flat on my back for a week...you know the details...sick from the flu and from starting the Duragesic patch, anyhow, since last Friday my pain level has skyrocketed once again. I would say it's every bit as high as it was when I was taking Oxy :(...I just called my doctor today because I thought it would work itself out but it hasn't eased up one bit. I have an appt with her on Monday morning. I feel very confident that she will adjust the patch for me. She is, after all, an angel :angel: in disguise. I'll let you know what she decides to do.

I hope to hear from you soon. Have a wonderful weekend.

Patiently waiting,