Discussions that mention enbrel

Arthritis board


Hi Julie,

I am 42 years old and have had AS for around 5 years now but wrongly diagnosed til this time last year. It started in my back then my knees and now my ankles, shoulders elbows wrists and arms. Yes AS or any form of spondyloarthropathy which is the family it is from can cause pain also in your tendons. AS can also affect your heart lungs and bowels if you leave treatment too long. I didnt know I had it and didnt take any medicine and nearly lost my life with bowel problems. Dont ever be worried to ask questions as many as you need til you find the answers. I kept believing my Rhuemy was right until I got a good one that then agreed with what i was saying. In females it is worse when menstruating you will probably find that you swell the most everywhere around that time. It is a nasty disease but now I am soon to start enbrel I know this will be the answer for me. You must take care of yourself. As for your sleeping there is no answer there because for me I find if I sleep too long I end up alot more stiffer and in pain so my body clock has learnt to deep sleep me for two hours and wake me up to move. Swimming is a good form of exercise but once again be careful as the density of the water can sometimes bring swelling out. A heated pool is the best way. Hydrotherapy if possible. I was feeling alone like I was the only person in the world that had this condition I am glad to have someone to talk to about it. I never wore high heels either. :)
This condition can affect your muscles so protein in your diet is very important as well as some potassium. What you eat and drink can make a big difference.
If I can be of any further help please just ask away I am only to happy to share.
Good luck
God bless
Olivia :)
Hi Goldie,

It was great to read your post and to know that I am not alone. The bowel thing is horrific. As for the remicade dont be afraid it was good for me until it simply just didnt work. It was too long in between refills ha ha.. It did make my toes go purple however if I sat for too long. So keep an eye on your circulation. I found enbrel to be better. It also helped my bowels and stopped the diarrohea but unfortunately I have an allergic reaction to where they inject it so the next stop is Humira. I once was scared of any kind of medication even paracetamol. Just dont like taking medicine but now I would take anything if it meant a better quality of life and no wheel chair. It is amazing how you change. What happened with your bowel if you dont mind me asking? I just developed chronic diarrohea and went from 94kgs to 46kgs in three months. Couldn't eat or anything. Just felt sick all the time and very weak. The specialist said that if I hadn't got to hospital when I did I had about four days to live. That was really scary but am much better now up to 52kgs aiming for 60 not sure what that is in pounds but I was a big lady.
Thank you again for wishes. I wish you all the best too and thanks for taking the loneliness away.
Good luck
Olivia :)
[QUOTE=Lady Olivia;2698371]Hi Goldie,

It was great to read your post and to know that I am not alone. The bowel thing is horrific. As for the remicade dont be afraid it was good for me until it simply just didnt work. It was too long in between refills ha ha.. It did make my toes go purple however if I sat for too long. So keep an eye on your circulation. I found enbrel to be better. It also helped my bowels and stopped the diarrohea but unfortunately I have an allergic reaction to where they inject it so the next stop is Humira. I once was scared of any kind of medication even paracetamol. Just dont like taking medicine but now I would take anything if it meant a better quality of life and no wheel chair. It is amazing how you change. What happened with your bowel if you dont mind me asking? I just developed chronic diarrohea and went from 94kgs to 46kgs in three months. Couldn't eat or anything. Just felt sick all the time and very weak. The specialist said that if I hadn't got to hospital when I did I had about four days to live. That was really scary but am much better now up to 52kgs aiming for 60 not sure what that is in pounds but I was a big lady.
Thank you again for wishes. I wish you all the best too and thanks for taking the loneliness away.
Good luck
Olivia :)
Dear lady Olivia, I can sympathise with you as I couldn't eat anything acid or it would go straight thro me. Since i have been on Humira and taking Losec in the am and pm that has all stopped for me. I can drink wine and eat tomatoes yeah!!!!!:p