Discussions that mention fosamax

Polio board

My mother has PPS. She is 67. Really started seeing the signs about 15 years ago, but only in the last couple of years has it really been pretty extreme. She is now stooped over & can only use a cane at home, so she mostly uses a walker w/ wheels & uses her electric wheelchair at home. She believes the thing that has helped keep her going is calcium. Even though she is now diagnosed osteo & taking Fosamax, she really believes that extra calcium keeps her going. She does have to take Ibuprofen daily & w/o it she could not get out of the house.

I think the important thing is view this from both way. She needs the appropriate apparatus', but needs to exercise as well. I think a combination of both will help her tolerate & the exercises will help w/ circulation & clear head.

Also, determine if her home is still accessible. My mom did get a ramp but in, but eventually the concern is going to be her bathtub. She already has an interesting way of getting in & out, but I know it won't work forever. She really needs the kind she can step in & sit down, but the bathroom is not built to accomodate. I think it's important to really look at these kinds of things ahead of time before it's too late. My mother is very difficult to deal w/, therefore, this is easier said than done. If you have a good relationship w/ your mother, please accept the inevitable & start planning for the future, whether to redesign house, move her to assisted living, or move in w/ you w/ redesigning your own house.

I do believe your mother must have done something right over the years if to only start developing PPS now. From what I've read, the average span between year that problems subsided to when PPS starts is around 40. I don't know your mother's case, but usually childhood polio left many w/ some complications in adulthood, but life was manageable. My mother had hers at 15. The diseased muscle was removed & she was able to live a fairly normal life until the residuals started around age 52.

Research is important. You need to find out as much as possible about it & see what facilities in your area can be beneficial for treatment. Haven't been able to talk my mother into treatment & she refuses to take any stronger medicine. She's a tough cookie!

I wish you the best. This is not a condition she suffers by herself. This involves your entire family. kd