Discussions that mention humira

Arthritis board


Hi
Im a 20 yr old from Ireland, I was diagnosed with PSA in febuary of this year although Id symptoms from as far back as 2000 but I never did anything about it just used over counter pain relief, but this year I the morning stiffness and all pain became too much I used set my alarm for 6am so I could get up for 8 without anyone realising I was so stiff it was when away for a weekend with my mom when I cried all night in my sleep and couldnt move for 3 hours in morning she decided to make me go to the doctor, since then its been a whirlwind It affects almost every joint, ive psorisis on my scalp and a few skin patches its the pain and swelling and stiffness in my joints that really bother me I also have bowel bleeds and chronic anaemia asthma , hypermobility syndrome and history of ovarian cysts and aterial clots i had major surgery to correct this and since then it seemed to kick this off, I first was tried on difene 200mg a day then added deltracortil of 40mg reducking down to 5mg this helped settle it but once i came off the steroids it flared up again so the decided bcoz of this and errosive signs on my bone scans to start me on methotrexate, im on it 4mths but im still in agony and get really bad swelling and redness and pain, im now on MTX 15mg, 15mg of deltracortil(predenisol) 200mg difene a day 80mg oxycontin, oxynorm5 to 10mg as i need it and 400mgtramadol and 4gsolpodol 100amitriptyline 7.5mgzimovane 20mglexapro, 40mg nifedipine, 40mg nexium, im on stemitil to help the nausea, ive steroid creams nd lotions and folic acid to help control side effects of MTX yet im still losing my hair and getting lots of infections and even on iron injections twice a week im still chronically anaemic witha Hb of 10 which is high for me as it was 7.6 Im wondering if anyone has had similar problems or does anyone have any advice for me im v depressed and feel very isolated by this disease and would love to hear from ppl who understand where im coming from, thanks for taking the time to read my message hope to hear from some of ye.

also is anyone on humira?? my rheumotologist is talking about starting me on this also
and im waiting to see my pain specialist to review my pain meds adn get me better pain relief
i find heat pads very good too if that can help anyone
chell xxxxx:)
Dear Ronnie
Im sorry to hear your not having great success on DMARDS im on MTX now over 4 mths yet am having daily flares and am in constant agony im on huge doses of oxycodone and other pain medication sleeping tablets the lot, im on anti depressents they help a bit but im in agong at the moment and ive been even getting suicidal thoughts but Ive shared how I felt with my mom and we went to see my GP and she says its reactive depression to all the pain so she doubled dose my oxycontin and the oxynorm so im slightly more comfortable. Im meeting for the first time a new pain specialist tomorrow so im very nervous if he cant help ill be in bits. I see my rheumotologist monday im still trying to get off steroids ive had to stay on them continuosly since may to conntrol my swelling and symptoms but im still getting bad flares, shes not to anxious to start me on Humira (anti TNF drug) but if the pain specialist cant help me then im going to have to insist on trying something new have you tried any biologics? ya I get awful night sweats and I get cold sweats during the day its horrible. Im doing a lot of hydrotherapy and physio have you found either beneficial?? ya im using betacap but still i get bad patches but what can ya do.
Can I ask where you are from?? Im in Cork in Ireland
Hope to hear from you soon
Also my gp spoke of injections into my most painful joints but its not steroids somehing else to relieve pain are these what you have had??
Hey guys
Sorry havent replied sooner my hands were too stiff and swollen to type, but after steroid injections into my butt and incresased dose of predenisole and painkillers Im able to move my hands again, Ive come off methotrexate and am now on arava I only have so far missed one week of MTX but I have no nausea and vomiting although my scalp psorisis is terrible, Im now or arava and it makes me dizzy and a bit drowsy for a while after i take it but i just have a rest and feel much better than on MTX Im really hoping this improvement will continue Im back to the Rheumy start of january and in contact all the time but if im still experiencing bad symptoms I will be started on Humira(biologics) Ive most of my shopping done for christmas Ive done it in bits since october so Im planning to take it easy next week and try be as well as possible on christmas day as I see most of my close relatives and ive always kept a brave face on, only my immediate family know how bad I really get. I have infortunateky developed 3 ulcers from tiny wounds breaking down as a result of a depressed immune system and Ive also got a burn on my back from a heat pad so I am having regular dressings done and we are trying to keep the two burns from turning into ulcers too, 2 of the ulcers are superficial and healing well and one is a little deeper but is healing slowly. do ye find the cold affects symptoms?? im getting a lot of pain with the frost over here its really cold the past few days and nights and Im gettin really sharp pains


Ronnie - I hope you are on something to help woth the symptoms now, are you on any PPI's ( medication to protect your tummy) I am and its preventing any major problems but I am on a high dose as I get terrible heart burn if I dont take them. Are you all set for christmas, do you spend it with family??? I hope your son is ok now well I imagine itll be hard to get over thats really a terrible thing to happen. Hows your grandaughter??

Well hope to hear from ye soon, im off to sleep now(I hope) its 6.15am
Bye xxxx