Discussions that mention keppra

Back Problems board


Kona,
1. It was diagnosed by CT scan, Myelogram, MRI. At first Neurologist got interested in confirming this diagnoses based on symptoms only. He evaluated me for about 30 minutes; i had to move certain directions and tell him what exactly I feel. He put pressure on C-7 and told me to let him know what exactly I felt. Than he told me about ARC and that he suspects I got this condition but he needs to do couple of test to confirm it.

2. When it was confirmed, he explained to me how could I get it and what to espect in a future.
No cure, no treatments. Pain meds for the rest of my life. Unfortunatelly this condition does not stay put so to speak, it spreads further.
This is severe scaring of nerves and spinal cord. Pain is different than just pain from surgery or pain from inflammation. It feels like pain is all over your body, which is true. All nerves are hurting severely, affecting every part of the body. And of course my walking suffers, any body movement is a big job due to pain.
Even PT they do very careful (and not too much) due to nerve damage.

Unfortunatelly not cure so far and not much they offer for pain. I am on opiates not only due to ARC, i had 2 spinal fusions and more. PK really don't help me much with nerve pain. I also on Lurica, in a past was on Neurontin, Keppra. What helps other people doesn't work much on me. Many people like how Oxy works for them; I don't have much relieve being on this meds. I was 3 month on steroids, I had Gold Shots (I also have RA) and chimo therapy for pain, but when treatment stopped, I am back to square one again.

Worse is bladder and bowel problems. They tried to help me with meds for overactive bladder (even though I don't have one), but it did not work. For bowel nothing can be offered so far. :mad:

I have bad days, I have better days. So i try to enjoy when I can. I try not to think about Dr's say "ARC will never get better, it always gets worse". Whatever time I have on this earth, I try to leave it as fullest as I can. I have wonderful family and friends - what else can I ask for?

Please, feel free to ask any question you want; I am here to help you.

Best of luck to you!:angel: