Discussions that mention kineret

Rare Disorders board

Hello, I a glad to hear that I am not the only one. I am from Puerto RIco. I have a daughter who is 7 years old and started with the same sypmtoms you have already mentioned when she was 2 1/2 years old. The rheumathology diagnosed her using clinical judgement with PFAPA. Her episodes are usually every month but since she started in prednisone, episodes have been every 2 -3 weeks. THe other alternative she has spoken to me is Kineret and Colchicine. If someone has already used Kineret I will like to hear your experience.