Discussions that mention luminal

Inner Ear Disorders board


This is my first posting ever-but I am so pleased to find others with PET. (Or should say I am sorry there are others...)I have had it for 20 years, at times with one ear, at times with both. I have tried grommets, cartilage surgery, allerderm (sp?) injections, tranquilizers, Prilosec tabs, many things over the years. The vent tubes (grommets) have given me the most relief. I'm continually amazed with the state of the art medicine these days that they cannot find a permanent solution to PET, since it impacts one's life so drastically. I think I have developed PTSD because of years of this, never knowing when the "beast " would return, (usually when you least expect it). I see a wonderful doctor at The Michigan Ear Institute, Dr. S. Babu. He is compassionate and attentive. I also try to keep well hydrated and do my best to hold anxiety at bay. I think these may exacerbate incidences. I don't know about the vitamins and herbs and Patul-end you all have tried. Because I am on the slender side, and always have been, I eat plenty of fats in case there is a relationship of diet and low luminal fat. It is more intermittent than in the past, but enough to make life more challenging. I've had alot of depression from this, and have tried to work with those emotions through my studies of buddhism. Anyone had any experience with Dr. Dennis Poe? I see my doctor friday and am going to ask him about him. Thank you for putting your experiences out there for me to read. It all helps
Hey Crazyears...Yeah all of us feel for you. But hats off to you for giving everything a shot. You mentioned that grommets give u the most relief. How is that? I am planning to try grommets too. What kind do u have? Plastic, metal? And how long are they? You have PET in both ears?
Keep us posted.
Thanks
-Kunal





[QUOTE=crazyears51;3754832]This is my first posting ever-but I am so pleased to find others with PET. (Or should say I am sorry there are others...)I have had it for 20 years, at times with one ear, at times with both. I have tried grommets, cartilage surgery, allerderm (sp?) injections, tranquilizers, Prilosec tabs, many things over the years. The vent tubes (grommets) have given me the most relief. I'm continually amazed with the state of the art medicine these days that they cannot find a permanent solution to PET, since it impacts one's life so drastically. I think I have developed PTSD because of years of this, never knowing when the "beast " would return, (usually when you least expect it). I see a wonderful doctor at The Michigan Ear Institute, Dr. S. Babu. He is compassionate and attentive. I also try to keep well hydrated and do my best to hold anxiety at bay. I think these may exacerbate incidences. I don't know about the vitamins and herbs and Patul-end you all have tried. Because I am on the slender side, and always have been, I eat plenty of fats in case there is a relationship of diet and low luminal fat. It is more intermittent than in the past, but enough to make life more challenging. I've had alot of depression from this, and have tried to work with those emotions through my studies of buddhism. Anyone had any experience with Dr. Dennis Poe? I see my doctor friday and am going to ask him about him. Thank you for putting your experiences out there for me to read. It all helps