:(Hi All, well I'm not going back to my pain management doc. I had my second opinion with an orthopeadic doc. and won't go into to many details but it was a complete waste of my time he was of no help said he couldn't help me,I think I made the mistake of telling him I was there for a second opinion he heard that and I don't think he wanted to take on my case, so I'm not going back. With all of that happening, my pain doc. wanted to do more injections given the fact that my past injections have not helped but have made me worse I saw a red flag that told me not to go back.
Now I'll back up for a bit, the second opinion doc. did shed some light on one of my problems, he did tell me that given the fact with all my immune problems that I have my nerves are shot, my immune system is attacking my nerves and for anyone to do injections around my nerves will not help me and he advised against any such procedures, you see I have lupus, RA, OA, sjogrens, raynauds, I have had nerve issues in the past which docs have never come to the conclusion why I have gotten all the nerve problems, from carpal tunnel both hands, ulnar nerve both arms, trigger fingers. So everytime I have a disk that goes bad and it affects my nerves my pain levels are more so then the average so-called person. He did tell me that I need to go back to my rheumatologist and get treated more effectively.
So with all of this of course I've been looking for a new rheumy, I went to my family doc. and had a good consultation appointment with him, and I must say I got further with him then I did with my pain management doc. He put me on Lyrica for pain, and is getting me off the pain meds the narcotics, he said that the next time I go in for surgery pain meds won't help me because I've been on them for so long and that is why they aren't helping me anymore because my body is so used to them, and due to the fact that most of my pain is coming from my nerves he said let's try Lyrica, he was very annoyed that my pain doc. has not done this at all.
I'm also to go for tests on my thyroid I took notice two weeks ago that the front of my neck is grossly enlarged at first I thought I was imagining it but I wasn't, he is also sending me for an ultrasound of my thyroid, plus repeat MRI's of my neck and lumbar, neck due to the fact that I'm having the neck and head numbness, and lumbar given the fact that it's almost a year and that my disks are degenerating at a very fast pace, he was amazed that last year when I had my neck fusion in June my disk was still a disk but when I got operated on in Sept it completed collapsed he said that is very quick for a disk to go so fast, he said having RA and OA, and I have alot of arthritis in my back is not good.
So I'm keeping up with my family physician, I found a new rheumatologist through a friend of a friend I go in December to see her, and tests in two weeks hopefully things will get figured out.
So that is where I'm at, I've got to stick it out for several more weeks, and hang tough.
Hope you all are ok, for those that are going in for operations or procedures good luck to you, I wish you speedy recoveries, and that all your procedures give you less pain.
If I'm not here often it's not that I have nothing to say it's just that I'm in a lot of pain or my immune system has me down and out.
But I do think of all of you often.
Tulip15
Now I'll back up for a bit, the second opinion doc. did shed some light on one of my problems, he did tell me that given the fact with all my immune problems that I have my nerves are shot, my immune system is attacking my nerves and for anyone to do injections around my nerves will not help me and he advised against any such procedures, you see I have lupus, RA, OA, sjogrens, raynauds, I have had nerve issues in the past which docs have never come to the conclusion why I have gotten all the nerve problems, from carpal tunnel both hands, ulnar nerve both arms, trigger fingers. So everytime I have a disk that goes bad and it affects my nerves my pain levels are more so then the average so-called person. He did tell me that I need to go back to my rheumatologist and get treated more effectively.
So with all of this of course I've been looking for a new rheumy, I went to my family doc. and had a good consultation appointment with him, and I must say I got further with him then I did with my pain management doc. He put me on Lyrica for pain, and is getting me off the pain meds the narcotics, he said that the next time I go in for surgery pain meds won't help me because I've been on them for so long and that is why they aren't helping me anymore because my body is so used to them, and due to the fact that most of my pain is coming from my nerves he said let's try Lyrica, he was very annoyed that my pain doc. has not done this at all.
I'm also to go for tests on my thyroid I took notice two weeks ago that the front of my neck is grossly enlarged at first I thought I was imagining it but I wasn't, he is also sending me for an ultrasound of my thyroid, plus repeat MRI's of my neck and lumbar, neck due to the fact that I'm having the neck and head numbness, and lumbar given the fact that it's almost a year and that my disks are degenerating at a very fast pace, he was amazed that last year when I had my neck fusion in June my disk was still a disk but when I got operated on in Sept it completed collapsed he said that is very quick for a disk to go so fast, he said having RA and OA, and I have alot of arthritis in my back is not good.
So I'm keeping up with my family physician, I found a new rheumatologist through a friend of a friend I go in December to see her, and tests in two weeks hopefully things will get figured out.
So that is where I'm at, I've got to stick it out for several more weeks, and hang tough.
Hope you all are ok, for those that are going in for operations or procedures good luck to you, I wish you speedy recoveries, and that all your procedures give you less pain.
If I'm not here often it's not that I have nothing to say it's just that I'm in a lot of pain or my immune system has me down and out.
But I do think of all of you often.
Tulip15