Discussions that mention methotrexate

Arthritis board


Hi David,

It breaks my heart to read your post. I am a 28 year old female. I have RA, Fibromyalgia and Spondoloarthropathy. I was diagnosed at age 22.

I too had to wait for ages to get into my rheumatologist's office, but let me tell you, once I was there a weight had been lifted off me (psychologically speaking). I did not think, actually I couldn't foresee, my condition getting better. I wasn't even certain I had RA & Fibro & Spondyloarthropathy. My rheumatologist sent me for a bone scan, which is conpletely different to your average X-Ray. Well now - the proof was in the pudding! I was actually just happy to have someone who could diagnose me immediately after the first appt.

I am taking Prednisone, Folic Acid, Salazopyrin (sulpher pills at 500mg per pop!) and I was taking Vioxx, then Bextra, which were both taken off the market. My rheumy prescribed Durogesic patches @ 0.25mg to be worn for three days (they're Opiates but NOT mood-altering), then replaced and Methotrexate. They are horrendously expensive but one cannot put a price on one's day-to-day living and health & happiness... even functuality for that case! I used to wake up incredibly stiff, and yes, nights were worse too. Bearing in mind that I have lived with this for six years, my fiance fully supports me financially and emotionally. I HAD to resign from a job I loved last year as I was never sure how bad the days would be. Some were pretty tolerable, others were nightmares (there were no in-betweeners). The latter is what drove me to resign. Additionally, I started developing migraines AT LEAST once a week. I have been hospitalised many times as a result of the migraine attacks. Due to these migraineous attacks I was literally sick, with my head in the toilet bowl (sorry for that graphic picture!) for at least 24 hours if I was lucky. It has been a nightmare of mammoth proportions, but the best thing for you is to hold tight until you see your rheumatologist.

I know that's not what you want to hear as I felt the exact same way, but it is worth it. Your peripherals seem to be WAY out of control (hands, wrists, knees, ankles etc.). What got me through those weeks before I saw my rheumatologist for the first time was...paracetamol and codeine. Nothing else came close. I am now awaiting a new drug called Lyrica, perhaps ask your rheumatologist about it when you see him/her.

Another bugger is that I was only 22 years old, and I don't know how long I had RA for before I saw my rheumy. I'm 28 and desperate to make something out of my life, but for the time being it is NOT going to happen. Cold and/or damp weather is a big no-no. I know exactly how you feel. I never wanted to be a party-pooper but your health is so much more important. You will be doing more damage to yourself by staying outside or even out when you're feeling pain. I know this is NOT a solution, but take it from a once-vivacious young lady that you need to rest. Get as much rest as possible. I had the exact same problem as you have, I'd wake up two hours after I went to bed. I fully understand what you're going through, but please have faith in that the more you push yourself, the worse it becomes. At least I was able to finish my university degree, fat lot of good it's helping me! Please, try to take it easy. Also, please let me know what's happening. I'm at home and I'd love to be here for you.

I'm thinking of you, and you are NOT alone! ;)

Gen