Discussions that mention methotrexate

Arthritis board


does anyone here use enbrel for their RA? I am wondering how it is working for you. I had to switch from methotrexate due to hair loss. Anyone else with similar symptoms?
Hi Louie,

I have taken methotrexate and lost my hair and my liver count went sky high so they took me off it, I have taken sulphasalazine and leflunomide all with severe side effects, and my rheumatologist is seeing me in November to discuss enbrel, or remecaid, but dont know if I will get it due to strict pct guidelines here in Britain. I have heard people say that they tried all the other drugs, with no joy, and then went on to enbrel and felt absolutely brilliant again. If you do get on it and the results are good, keep us all informed. The best thing for my arthritis was methotrexate, but it didnt do the rest of me any good!! Good luck hope you feel good soon.

Ronnie :)
the cost of enbrel is 1800 per month for 8 little shots. that is why methotrexate is used first. if your hair does not fall out then you stay on the cheapest med there is whis is methotrexate.
Ive taken methotrexate which didnt help, instead all it did was have me throwing up & constant diahrea which ultimately i started bleeding from rectum
They put me on enbrel & well i will say it got my sed rate from 60 to 27 im still in alot of pain..

Also the enbrel made me burn up real bad when i went to the pool even using a 60 spf, but if i stop taking it my sed rate goes up so i guess its better then nothing

gl
i have been on embrel over two years was good for me so i thought,no flares but recently my hair has started falling out,now have very bad alopecia,has very bad flushes at night and can just about walk,i thought it was supposed to slow down the deformity,infact im having an ankle replacement next monday,as my joints are so swollen.i had noticed sometimes my sinuses hurt,after injecting the embrel,but i am off it now for the surgery and am bedridden,so what do you do,methotrexate nearly killed me,i think that there is not enough research done before giving this drug,but then i need something to make life better.i am just 5o and my mobility is awfull,i blame the embrel,anyone has similar problems.
I just realized that Enbrel comes with some complications i thought were raare. I had been on methotrexate. My hair fell out and I had a rash for a week. My d. switched me to Enbrel. Now I have some leisions in places I would n ot normally even think to look at. You must check your body every where. Even your genetils. If I had not had an itch there, I would not have found this issue. The results are not good. the dr. said the meds come with some complications that are usually rare. So check ladies and gentlemen. If you find a reddish brown spot, tell the dr. immeidatly because if u wait it can be dramatic. These spots indicate that the meds have cause a problem for my liver. So I traded one problem for another. I am glad I canmove but will I be if I have to go on the liver transplant list? I read it and ignored it because I wanted to walk so very much. My misfortune can be someones elses good fortune.

if there is a spell check her i dont know where.
Hi Every one, i started back on the Embrel yesterday 3 weeks after the operation ankle replacement i had only because my hands were swollen a bit and i was a bit achy,i took 50mg normal weekly dose but i will see how it works and i may try and get something else instead,I still have some hair loss and the patches are the same little hair coming through,so i think i will just watch it,as u all say there are so many side efects with embrel but what we all do if we need something,we have to do something,who thinks the new bevelled needle is so hard,i try 2 to 3 times sometimes to inject,its painfull and hard to go in,the other ones were so much better,i prefer to make up the dose myself.Methotrexate i had but had to come off after a week i was very poorly,so just talk with your Rheumy whats best for You Tess.
I just started on enbrel 3 weeks ago and I can say my hands feel a bit better and fatigue is better. I have had severe RA the past 24 years and probably had juvenile RA since my mom says I always was achey but doctors said it was nothing. I am seeing my rheumatologist again in January for blood work to see how enbrel is doing. I am still taking methotrexate,plaquenil, azulfidine, and folic acid.

I hope all works out for you too.




[QUOTE=louie112;3256651]does anyone here use enbrel for their RA? I am wondering how it is working for you. I had to switch from methotrexate due to hair loss. Anyone else with similar symptoms?
I use the sureclick autoinjector pen which I think is much better then syringe needle.

[QUOTE=tess50;3330242]Hi Every one, i started back on the Embrel yesterday 3 weeks after the operation ankle replacement i had only because my hands were swollen a bit and i was a bit achy,i took 50mg normal weekly dose but i will see how it works and i may try and get something else instead,I still have some hair loss and the patches are the same little hair coming through,so i think i will just watch it,as u all say there are so many side efects with embrel but what we all do if we need something,we have to do something,who thinks the new bevelled needle is so hard,i try 2 to 3 times sometimes to inject,its painfull and hard to go in,the other ones were so much better,i prefer to make up the dose myself.Methotrexate i had but had to come off after a week i was very poorly,so just talk with your Rheumy whats best for You Tess.