Of course I don't mind about questions you fire away and I will do my best to answer them..
Firstly I dont know the concentration, But I do know it is way different from the USA here as they obviously have learnt things from you in the USA and try to do their best doing whatever is wrong they try to right it, so I imagine its ok!
I do know its all sealed and made just for me when needed and the pharmacey chap himself is very nice and seems to be on the ball.
I do know our Orthopeadic and nuero surgeons and pain annesthetist go to the USA to different conferences to hear new things very regulary.
Here we are still not able to use Piralt, My Dr was going to try this medication on me maybe if my granuloma went, As we expected it to be passed in september 2005 last yr but was not.
Anyway back to me and this 'Inflamatory Mass' as medtronics like to use the term, I still say Granuloma :D
Dave at the time I was getting increasded pain I was only on 8mg a day plus taking Oxycontin ect for breakthrough pain.
I was increased to 10, then 11, then finaly 12 mg just a short time after this I had a dye test this showed nougthing so was given an MRI just 3 days later, this was an emegencey appointment (In the UK you can wait upto 6/9 months for one of theses, so I do wonder if my Dr did see something but did not want to worry me there and then.) This MRI showed a small granuloma, so the plan was to take me off my meds in pump gradually, then run it on saline with me back on oral medication.. I was origanaly on Morphine and clonidine, I must add here my pain annesthetist is so very good and would trust him with my life..
Whilst back on Oral meds I ended up taking 780mg of Oxy a day plus loads of other stuff nerve meds (lYRICA, AMYTRIPTYLINE,VOLTROL , loTs of antimetrics WHOOPS SORRY CAPS, PLUS MANY MORE.)Anyway this made me very ill and ended up in hospital for 3 weeks, I was given another MRI whilst In hospital and granuloma had not changed.
Before I was allowed home my dr decided So that I was not so sick, they decided to lower the takeme off Oxycontin amd put me on fentanyl patches, then put clonodine in my pump without saline and anything else hoping this might help disperse the mass.
8 weeks later unfortunatly I was admitted back into hospital for almost the same thing but very ill indeed they thought they were going to lose me.
My Dr siad after many other Drs had tried to insert a decent canula "I am a anesthetist and I cannot even get in a canula, my body was shutting down, they had to use my foot then that shut down eventually to just get blood they used my fermoral artery (only annesthetist) and I was put on a drink and food chart as my digestive systom slowe dright up and I could not take anything nor pass anything full stop!
My Dr deciced whilst I was I hospital he would do revision surgery trying to move the catherter down from T12 to L2 but he could not it was stuck and the biggest fear was a major bleed due to the artery's being there, all he managed was T10. And now it is still there but bigger, and my electric shots, numbness ect are so very painfull, If it was not for this Laptop my husband bought for me this christmass I would not be posting, I could not before and I still go in fits and starts. It as been a year since this all started.
The difference in procedures with the other guy from America is my Dr wants me flat on my back at 'Least 5/7 days (I maybe in hospital more than this I have been warned) this is due to my Dr changing my medications to maybe Dialudid and he siad as I have been getting say 12mg It could be leathall to give me this equivalent dose again as the morphine as been going somewhere else and obviously the granuloma so It will be like starting all over again so we have to titerate up very slowly.
Also yes Dave I am keeping pump in as it is now only 2 and half yrs old 3 yrs years this yr, (We just hope that by disturbing pump it won't upset it, as they have to make incision again in stomache removing old scar tissue to connect new catherter and remove old catherter) they also want to put in a new 2 piece catherter as mine is a one piece; plus due to them going into the dura ect to get to the pump and then also punctureing me again with new two piece cath I will certainly have headache.
This other Chap appranlty is having the same procedure I think but only spending one maybe two nights in hospital. Yes I would rather go home, Infact I thought I was, My Dr siad "no way you stay in', so it looks like I have not alot of choice, he also staed this is due to our ill I was all last summer being in and out of hospital he wants to make sure when I go home I am well this time :) ..
I must go now as I am hurting, Please ask me anything If I have failed to tell you, or anything else for that matter, And Oh yes I have older model, as My Dr as siad when I have next one It holds more medications, making refills less close together as I too usually have to go every 4 weeks. Origanaly I was told It would be about 10 weeks inbetween refills; mine maybe was as first but it got closer each time, I can't wait for it to be further apart as I hate going to hospitals, I get all heated up with them, My husband says he can see the worry in my face, Yet I should be used to it after all this time, and I have known this Dr I have for 11 yrs.
Take care for now.
Treacle, aka Diana :angel: