Discussions that mention morphine

Osteoporosis board

GirlySoGroovy - Parathyroid cancer is really rare, and I am so glad they caught it and that you're okay. I had surgery about a week and a half ago, the worst bit was that I had a reaction to the anaesthesia, but I always do. One of my friends pointed out that it might also have been a bit of a purge of some of the calcium ick that's been in my body over the past five years or so - that's approximately how long this has been going on. Makes as much sense as anything.

I did get immediate relief from the crushing bone pain. I still have some pain, because I have fibromyalgia and RA, but after I went hyperpara, I had such bad pain in my hip it would routinely wake me up in the middle of the night and I'd have to take morphine and try to keep from screaming til it kicked in. Then it'd do it again in the morning. But even the night after the surgery, that went away and hasn't been back. My eyesight is also getting better (I can read books again!), and I've lost 7 lbs. I'm one of those weird people who gained weight even though I couldn't eat anything because I was always ill at the stomach. That hasn't completely resolved, but it's got some better, and maybe I'll finally get back to my normal weight. Still having cognitive difficulties, but I've heard those are the last to go. I also went mildly diabetic, maybe because of the hyperpara or the weight gain, but that's controllable by diet, and with luck not to be heard from again. I am not 100%, but I'm doing way better than I was before the surgery. Taking megadoses of calcium, too, because I also got osteoporosis.

Kkl - my serum calciums were usually around 10.5 or so (the high being I think 10.8 and the low being 9.7 - 9.8 - it did bounce sometimes), my ionised calciums were usually around 1.42, and my PTH bounced from the low-20s to 40. But but but - even when it was around 34, the lab flagged it as 'suspicious but inconclusive'. I do know that the higher end of the PTH scale only applies as you get older - it's not normal to have PTH of 65 if you're in your 20s - mid-50s. And my Vit D was so low it wasn't even registering.

How I got diagnosed: I sacked my endocrinologist (who was an idiot, I hate to say, but at least she ruled out everything else that could possibly cause high calcium and quite a few things more), did a lot of research, and got my doctor to think it through with me. If you've got hypercalcaemia, your parathyroids should turn OFF. IOW, unless you've got a PTH of 5 - 10 when you're hypercalcaemic, you've probably got an adenoma. And here I was with all the symptoms except hypertension, and 'normal' PTH. The osteoporosis sealed the deal, since I'm not near old enough to have that.

The scans, both at home and in Florida where I had the surgery done couldn't localise the tumour, but it was in there. Small, and hiding, but even a little tumour can make you very very sick.

I'm very glad I had it done, even though it was scary to go through. I've got a good prognosis because it was a small tumour (maybe about the size of a pencil eraser), but it had been in there causing havoc for five years. In some weird way I may have been lucky that I was symptomatic, even if I was miserable. I don't like to think what it would've been like had it gone another five years. And most of that time was spent with my endo going on wild goose chases. Had that not been the case then maybe it could all have been sorted sooner - but nobody ever sees parathyroid disease, so if you don't have absolutely classic labs they're reticent to diagnose, and given they don't have MIRP in my country, even more reticent to suggest surgery.