Quote from bluebanana:Struggling today, nebbing evry 3 hrs during the day and every 2 hrs at night, not much fun and I'm knackered!! Dissolvable pred tastes like nail varnish remover, but is a pretty pink colour!!! What dose pred are you on?? Also what is the generic name for the new stuff you are taking?? Not heard of it before. I'm hoping to try the xolair when it gets licenced over here. Find out tomorrow what the Brompton are going to do about rescheduling my tests.
I feel awful...... oh well, at least I'm not in hospital!!
Hope you are managing to go longer between nebs now.
x x x
Eek, sorry you're nebbing so much. What do you use in the nebulizer? I use Mucomyst (really disgusting smelling, I try not to use it often) and Duoneb.
No change here - still nebbing every 3-4 hours. I don't even rinse the neb cup anymore, I'm using it so often. Some people at the pharmacy here that refused to fill my neb prescription ... I'm not sure why? :confused: Oh well, we eventually got it.
I'm on 40 mg of pred right now from 60 a few days ago. My face is beginning to get puffy and I'm constantly eating. I try to limit it, but it's difficult because my mom is always buying sweets.
I'm not on Neoral
yet (and I hope I don't have to be on it) but it's generic is cyclosporine. My immune system is already shot with the pred (I've got some mad crazy thrush). Maybe you could ask your doctor about the cyclosporine, it might work for you.
Xolair might help you also. I've been getting monthly injections but haven't noticed anything yet (I hope I will though!!! ) It's generic is omalizumab (not sure of the spelling) Hope it's licensed soon there, I think it might benefit you.
I think they should have gotten some tests done with your last admission. Maybe you could get an overnight stay (or however long it takes to get the tests done) to get things going.
Oh well, hope to hear of you doing better soon. I wish asthma wasn't existent. So many more people would be happier. Take care. :)