Quote from CrohnieToo:Hey, JudyInOttawa, CrohnieToo could go by JudyInMichigan! The Aredia (pamidronate) that is the infusable I was mentioning is a bisphosphonate. Just an infusable version of the oral bisphosphonates. I assume you also take a calcium and vitamin D supplement w/your oral bisphosphonate? Why not discuss w/your doctor taking a higher dose of vitamin D, a scripted dose which is higher than you can get OTC? I tend to think that the high dose of vitamin D my Endos put me on had a great deal of influence on my excellent response to Forteo. I know the vitamin D can't do it on its own since I was on only the high dose of vitamin D for a year before starting the Forteo, but as good as Forteo can be, it is unusual to have as good and as fast a response to Forteo as I was fortunate to experience. I was on SCRIPTED 100,000 IU vitamin D weekly for a year prior to starting Forteo and which was just recently reduced to 50,000 IU vitamin D weekly. It comes in a gel capsule and is quite inexpensive.
Hello ..to you JudynearMichigan, Crohnietoo ...I really appreciate your tip about vitamin D capsules ...I have become quite discouraged as my endocrinologist became ill (he ws a wonderful doctor) and is no longer practising so I have been bumped around a bit, so have lost the follow up that I need. I have to be proactive and find myself a good doctor now, of course they are all good, but I like endocrinoligists and mine did the XLaps test and he used the results to plan my therapy. What tests should I be looking for in a doctor's plan? Right now I have no one really looking after me as my musculoskeletal doctor said at Christmas "well, come back when you have a fracture!" as I told her that the 18,000 dollars (my med plan does not pay for forteo here as it is called experimental in Canada) ...I did not have ready access to the 18.000 dollars required, but I could mortgage my house and have hestitated on that, thinking that something else might come along, but I guess the Aredia is not for me as I took Fosamax for five years and still kept going down in bone density. My gynocologist has me now on Estrogen and Progesterone (hot flashes etc ) so she thinks that might help the osteo ..not sure what I think ..but I am taking it. Any information very helpful and yes, the Vitamin D sounds great, no sun here at all ..I take 1000 mg in a pill just a vitamin, but does that help? My D levels have been a bit low in the past when my previous endo did the blood work (Xlaps) ...I thank you so much, my name mate ..judyinMichigan....you are so knowlegable and every bit of information makes a big difference for me. Oh yes, about the Eli Lily people, they are very nice to me, I have bought last year two months worth of Forteo (one package expires Decemeber first this year) so I guess I should take it, just two months worth, is that a good idea? It is in my fridge, and of course I could just go ahead and buy the rest ..I am not poor enough for Eli LIly to help me with "their help program". I guess I might just have to face it and buy the rest of Forteo. I read the Myth of Osteoporosis and liked the book and began to wonder after if it all is that necessary and that I should work out more, walk, get in the sun etc. Advice most welcome. I need a new endo doctor as you can tell am quite unsure of what I am doing. Thank you for any new knowledge or advice .Hope you and your Mother are doing well. judynearottawa