Discussions that mention pamidronate

Osteoporosis board

Wow, I can not believe that it took me this long to find this board( my family has medical problems coming from all directions).

I am posting today concerning my DD who is 6. She was dignosed with Celiac Disease in 1/07. She has been on a GF diet ever since her biopsy came back +. Her numbers came back - for the first time in April of 07.

I requested a DEXA scan for her because she has been experiencing unexplainable severe and chronic leg pain since Oct 06. We finally got to the endocrine Dr last week and found out that her DEXA scan Z score did show that she does have JV Osteoprosis.

He is currently running more labs to see if she has another autoimmune disorder that could also be causing the JV O ( he already agrees that CD can cause it). Meanwhile he wants me to look into giving her Fosamax or Pamidronate to help her build up her bones.

Has anyone else here had to make this choice? Both meds seem to have big drawbacks but they seem to do a great job at building up the bones.

Any opinions would be appricated.


ETA~ She does weight bearing activity 2x a week.