Discussions that mention potassium

Lupus board


I am 33 years old and have been sick for the last 12 years. I catch everything going around but on top of that I have been hospitalized more times than I can count for pyelonephritis (severe kidney infection), infected gallbladder that was removed, aseptic meningitis 4 times, bacterial meningitis, asthma, pneumonia, shingles, severe migraines that cause dementia and/or speech problems, and on and on. I have been told I also have a brain cyst.
I was recently hospitalized for aseptic meningitis however now the doctors are saying it may not have been meningitis. When my spinal fluid was taken it was clear, at that point I was told it wasn't meningitis though I had a fever, neck stiffness, and a terrible headache. An hour later, after testing, I was told I did in fact have aseptic meningitis because my spinal fluid had 636 WBC. I was admitted to the hospital for 8 days during which time doctors finally tried to determine what exactly was wrong with me. Throughout the years I have heard diagnosises of fibromyalgia, MS, lyme disease (even tho to my knowledge I have never been bitten by a tick), etc. I was also found to have low levels of potassium & they were scared of heart failure so I was put on the heart floor & strapped to a heart monitor. I received IV potassium the entire time I was in the hospital. I was also severely anemic. My spinal fluid came back positive for herpes simplex after 5 days but I have NEVER had any type of herpes outbreak-not even a cold sore.
After the hospital stay I was sent to an immunologist who ran tons of additional tests and he said I had a low C4 but a negative ANA which led him to believe I have lupus cerebritis (which he said is central nervous system lupus). He has now referred me to a rheumatologist and a neurologist. (He said ANA was often negative in people with CNS lupus)
I feel HORRIBLE everyday. My pain scale is constantly at a 7 or higher. My head hurts nonstop, my joints ache, I run a low grade fever off and on, I have "brain fog" as I can't seem to remember anything, sensitivity to sunlight (I get sick everytime I am out in it...if out to long get the meningitis like symptoms)I have numbness & tingling in my left arm & leg constantly, I trip and almost fall a lot and weakness in my left side. When my head hurts really bad I also have a tendency to talk "gibberish". I hear normal words coming out however my family hears "gibberish" (just sounds not actual words...my mom describes it as me talking a foreign alien language)
Does this diagnosis sound feasible? Anyone hear with lupus cerebritis who can tell me anything about it?
I would appreciate any help you could give me....;)
SOMEBODY PLEASE RESPOND WITH YOUR THOUGHTS...