Discussions that mention pravachol

Neuropathy board


Hi All,

I'm new to the boards, so if this has been covered, apologies in advance.

I took Pravachol over 5 years ago. My life has never been the same since.

I suffered severe muscle pain (apparently a "side effect" of statins) and went to a neurologist. He told me that my muscles were "dissolving like cotton candy in water", but if I stopped taking the Pravachol, my muscles would grow back and I would probably be fine.

Well, 5 years later and I'm not fine. I have small fiber neuropathy, and it has continued to spread. It started in my feet, and has slowly climbed up past my knees in both legs. I also have begun to notice the same tingling feeling that I first experienced 5 years ago in my feet in my hands. Not good news.

I am in chronic pain, and I have not found any relief. I am now in a pain management center, but I'm not feeling any relief from the meds that this doctor has put me on.

I guess the big question I have is, has anyone successfully gone after BMS for these side effects? I've spoken to a number of lawyers who refuse to take my case because the side effects were printed on a sheet.

My searches on the web have shown that I am not the only one that has experienced this problem with these statins (Pravachol, lipitor, et.al.) Are we all just out of luck? What kind of critical mass does it take to get these types of drugs off the market? If a lawyer can sue the tobacco industry even after the surgeon general warnings, why can't they sue the pharma companies that are destroying some of us?

I'm interested in hearing from anyone else that has suffered from the same sort of problems, especially those that have taken Pravachol. This has changed my life drastically. I'd rather have high cholesterol instead of the pain I have from my neuropathy. Now, I have both. :(
Hi and welcome!

I've seen some threads on questions similar to yours in other topics in this health forum. I'm not sure what you could search for to find them though or if they'd be helpful

You could do an internet search for Public Citizen. They are responsible for getting the FDA to take another look at Crestor, another statin like Pravachol. There is currently a class action suit for Crestor and they have already had Baycol removed from the market. Apparently, there was sufficient evidence that these statins could cause serious side effects and should not have been released. You could find help through Public Citizen about what is being done about Pravachol. I don't know if they are going after these top 7 statins one at a time or what.

In my own opinion, I think the FDA is too relaxed and are submitting to pressure to release these drugs too quickly. Twenty years ago, a nephrologist friend of mine warned about this very thing. He said that putting NSAIDs (ibuprofen) over the counter was keeping him in business. The FDA relaxed their criteria for long term studies and people are suffering for it.

I am so sorry you are going through all this. I know no amount of money will make up for your pain and suffering and you would PAY any amount to get your life back to normal. But if class action suits are the only thing that makes the drug companies pull dangerous drugs, then they should be pursued. At least some compensation will help pay for medical treatments and bills.

Don't give up hope. Sometimes treatments take time before any real relief is obtained. And new treatments are being developed. I have severe neuropathy in my feet and legs but I am finally getting some relief. It didn't happen at once but has been gradual. You may want to read the threads on neuropathy in this forum. Search for posts by 6foot3 and myself to find the ways we have used medications, diet, supplements, exercise, and biofeedback to control pain and increase energy. 6foot3 has also posted very interesting articles and info.

I am a firm believer that I could not have shown much improvement with medications alone. I have controlled all the other symptoms of my condition using these methods and am now working on what works best for the neuropathy. When I was first diagnosed with neuropathy, I could not sleep and had days of agony from the pain. I am now able to sleep most nights and have reduced my pain to about a 6. I feel that it will continue to get better even though the neuropathy has spread.

This board has also been a lifesaver. Sharing information has been immensely helpful and the support is necessary because here, you will find those who know exactly what you are going through. You can only describe the pain to doctors as best you can but here, we know immediately what you are saying. I hope you will stay with us and let us know how you are doing.

Susan