Discussions that mention prednisone

Allergies board


Hi - I’m new here... Found this place while doing some internet research and y’all look like a nice group of people, so I thought I’d join. I am a long-time sufferer of chronic hives. It started when I was 15, and I am still suffering from it at age 38, some 23 years later. I’ve been to endless doctors, who have given up and basically told me to just “live with it”. I do not have hive breakouts constantly. I experience flare-ups every couple of years that last for weeks at a time. I seem to break out mostly at the joint areas of my body (shoulders, elbows, wrists, hips, knees and ankles). I also experience the swelling around my eyes and on my lips.

Whenever I experience a flare-up, I go to the doctor for the usual course of treatment. They do bloodwork and test me for Lupus, RA, MS, Epstein-Barr, schleroderma, etc. (the tests always come back negative.) I do a course of prednisone, I take benadryl and claritin, and then the doctor eventually throws up his hands and says that they can’t give me a diagnosis, and that it appears to be some sort of auto-immune type disorder, but they can’t figure out which one. Then, eventually the hives go away and I’m o.k. until the next flare-up.

I came down with a nasty case of influenza back in April and was very ill for 8 days. I eventually got rid of it, but haven’t felt the same since. I got a pretty bad case of hives again, have extreme lethargy and difficulty concentrating (brain fog), wheezing in my lungs and a weird feeling in my esophagus area (like I swallowed a giant pill and it got stuck...) I am wondering if I have chronic fatigue syndrome or something. I guess I will go back to the doctor and try to get to the bottom of it, but they never seem to know what to do with me.

So, I thought I’d tell my story here and see if anyone had experienced anything similar to this. It helps a lot to communicate with other people who suffer from these same ailments. The people around me, my family, even my husband are not able to really help. They are supportive but just don’t understand what it is like to go through this. I was hoping this place might be good to share my experiences.

So, there is my story. I’m kind of excited to find this place, and am looking forward to communicating with everybody. Thanks for reading!
Hi there,
My symptoms and dx sound similar, only difference is timeframe. I'm just shy of having my hives for 12 months. They are very severe, like you. Swollen from head to toe, ears, palms, and sometimes big giant lips and eye's swelled shut. It has been the worst year of my life. My Dr has basically said my immune system is 'confused' and thinks it is fighting a disease that isn't there.

I am currently on Zyrtec for day, and Singulair, Doexpin, Atarax at night. Prednisone thrown in on occasion when I swell too much or think I'm going to loose my mind! The only time the hives are gone is when I'm on a high dose of the Predn. One thing that *DID* control it is Sandimmune, many doctors are hesitant to use it, since it is an immunosuppresant. It is commonly used for chemotherapy and with organ transplants, I was only allowed to be on it for three months. I am hoping to go back on soon, since it's the most relief I've had this year. My Dr. said it often put's autoimmune hives into remission. Not so in my case, but she wasn't surprised since she said I have one of the worst cases she's seen in her lenghtly career.

It might be worth checking next time you have a flare up.
-Eris
Hi there,
My symptoms and dx sound similar, only difference is timeframe. I'm just shy of having my hives for 12 months. They are very severe, like you. Swollen from head to toe, ears, palms, and sometimes big giant lips and eye's swelled shut. It has been the worst year of my life. My Dr has basically said my immune system is 'confused' and thinks it is fighting a disease that isn't there.

I am currently on Zyrtec for day, and Singulair, Doexpin, Atarax at night. Prednisone thrown in on occasion when I swell too much or think I'm going to loose my mind! The only time the hives are gone is when I'm on a high dose of the Predn. One thing that *DID* control it is Sandimmune, many doctors are hesitant to use it, since it is an immunosuppresant. It is commonly used for chemotherapy and with organ transplants, I was only allowed to be on it for three months. I am hoping to go back on soon, since it's the most relief I've had this year. My Dr. said it often put's autoimmune hives into remission. Not so in my case, but she wasn't surprised since she said I have one of the worst cases she's seen in her lenghtly career.

It might be worth checking next time you have a flare up.
-Eris
Thanx for all your replies - it has been very helpful. I may need to bite the bullet and go back into the dr. This last week has been horrible - I am covered (literally) from head to toe with huge welts. Benadryl isn't even helping me anymore. My eyelids, lips, hands and feet have been completely swollen up - by nightime I can barely walk around because the bottoms of my feet are so swollen. This is the worst flareup I have had in a long time - may need to do some Prednisone and Atarax again...:(