Discussions that mention provera

Back Problems board

Wonderingtoo --

I have been struggling with how to respond to you. I am just a person on a board that you don't know from adam but I want to offer you some advice coming from the heart because I would hate for you to be treated incorrectly.

To make a very long story short, I had a miserable road to diagnosis of endometroisis and I was treated for a disease called Crohns disease for 4 years. They treated me based on my symptoms and not a concrete diagnosis. Feeling desperate and getting worse, I finally checked myself into to well known Univeristy Hospital in Baltimore and they were able to make the endometroisis diagnosis after many, many tests, and a long hospitalization. We tried numerous medicines such as danocrine, leupron (a blind study and I actually was on the drug), depo provera, etc and I ended up having a complete hysterectomy at the young age of 24. My doctors and I both were devastated that at 24 I had to have a hysterectomy.

I am telling you this because it worries me that they are treating you for endometrois without concrete proof. I feel if I would have had the proper diagnosis initially, I would have not endured unnecessary pain, hospitalizations, bunch of ugly tests, and had a hysterectomy at such a young age due to being improperly diagnosed.

Just because I had this happen to me does not mean it will happen to you. It sounds like they are treating your symptoms which scares me because of what I have been through. My 2 cents or words of advice would be to go back and discuss everything with your GP. Who knows maybe he will have a totally different spin on everything and feel that other tests are warranted. If you don't get the answers you want, I recommend finding another doctor.

I hope that I have not come across to strong......I just care and don't want you to suffer unnecessarily and be improperly diagnosed.

God Bless.