Discussions that mention pulmicort

Children's Health board


Gosh, I don't know where to start as my wife and I are at wit's end here.
Our 5 month old daugher has had a persisent cough (alternating between a dry cough and productive) and wheezing for five to six weeks. It seems like we are in the pediatrician's office every week. She was hospitalized for two days last week, given periodic breathing treatments, placed under a croup tent. Tests for RSV and Influenza were both negative. Chest X ray did not show anything as well. As of now, she is taking Xopenex and Pulmicort (steroid) through her nebulizer everyday. We just started the Pulmicort last night, so it's a little early to see any results I guess. Her pediatrician is going to refer her to a pulmonary specialist in the next couple of weeks. We are getting concerned that this is not going to resolve itself anytime soon, or worse it's something serious. Does anyone here have any experience with this? Any ideas/suggestions/stories would be greatly appreciated
Thanks, the story sounds familiar. We took her to the Dr again yesterday, he said the congestion was coming from her nose and throat. Also said our daughter was very healthy, and not likely to have CF, or some other congential abnormality. Having said that, we have a appt with a pulmonologist in two weeks to rule anything out. If that does not turn anything up, we will be sent to an allergist. The Xopenex and Pulmicort does nothing to alleviate the rattling sound we hear. So apparently the Dr was right about the source of congestion being nasal/pharnyx, as both drugs are effective in relieving problems in the smaller airways (bronchioles) of the lungs. Still, it's very upsetting to hear your daughter rattle/sneeze/cough for weeks on end. We are so much at wit's end that we are contemplating the idea of my wife taking a long leave of absence from work to stay home with her. One other thing, you would think there is something (steroid based) that can be used to alleviate mucus production in the nasal passages. Sorry to ramble so much, I'm glad you found some resolution to your son. Hopefully this latest bout will be temporary.
Quote from rbryant:
Gosh, I don't know where to start as my wife and I are at wit's end here.
Our 5 month old daugher has had a persisent cough (alternating between a dry cough and productive) and wheezing for five to six weeks. It seems like we are in the pediatrician's office every week. She was hospitalized for two days last week, given periodic breathing treatments, placed under a croup tent. Tests for RSV and Influenza were both negative. Chest X ray did not show anything as well. As of now, she is taking Xopenex and Pulmicort (steroid) through her nebulizer everyday. We just started the Pulmicort last night, so it's a little early to see any results I guess. Her pediatrician is going to refer her to a pulmonary specialist in the next couple of weeks. We are getting concerned that this is not going to resolve itself anytime soon, or worse it's something serious. Does anyone here have any experience with this? Any ideas/suggestions/stories would be greatly appreciated


Hi,
I am so sorry your daughter has been ill for all this time. I do have some questions though. What is the dose of the Pulmicort and Xopenex and how often are you giving the neb treatments? Are you holding the nebulizer against her face for the entire treatment? (The meds do not work correctly if you are not holding the mask on her face.) Has your PMD tried giving her oral steroids as well? (Orapred or Prelone?) Is the specialist you will be seeing a pediatric pulmonologist? If your PMD calls the pulmonary office, rather than just having his staff call, he may be able to get the apt moved up. (Often the physicians are able to talk Dr. To Dr. and get apts moved up.)The best thing for your daughter would be for her to be evaluated ASAP by a pediatric pulmonologist. (And just so you know, it is vital that if they do order a sweat test, it is only done at a CF approved center.) Is the pulmonologist that you will be seeing affiliated with a Children's Hospital? The symptoms you are describing do not sound like they are just coming from the nasal cavity.
The portable humidifier is not a good idea. They often are a source of contamination, and I would suggest taking it away.
Best of luck to you. Please let us know what happens.
HI..need to update a few things. First, the dose we are giving is .25 mg Pulmicort twice daily. Xopenex as needed (.63 mg). Fortunately, things are finally looking up. We went to the pulmonologist at University of Kentucky last week, he felt that there was a 99.99 % chance that this is not related to CF. He cited excellent growth, family history of allergies/asthma. He also felt that the source of the problem was nasal congestion, although she did has some very minor inflammation of the bronchi as noted on chest xray. He put her on Singulair and extended the Pulmicort therapy. We are still having a time with keeping her nose clear (and this is with Singulair, Saline drops, cool mist humidfier). Her congestion is most noted in the morning, with a stuffy nose and a little rattle in her upper airway. He did mention the possibilty of adding a nasal steroid to her treatment.