Discussions that mention requip

Restless Leg Syndrome board

I have suffered from RLS all my life, so I will spare everyone the familiarly agonizing details as they are no different than anyone else's. When I was finally diagnosed via sleep test (my doctor's preference) he claimed that I had one of the highest RLS/PLMD cases he had ever heard of, and personally the highest he had ever treated. 90 PLMD's per hour. The first step was the parkinson's meds. Mirapex, Requip, permax, pergolide, synamet, etc etc. I had the same problem with all of these drugs and that was extreme side effects that made me feel drunk, included instant, immediate and long lasting migraine headaches, and tunnel vision impairing my ability to drive. The next course was to move me to sedatives first then hypnotic sedatives next. This round of drugs included xanax, klonopin and the likes. These medications, while they helped me personaly sleep (only if doubled in dose) they actually made my RLS worse. I woke up every day to find my wife on the couch, and after a few weeks noticed bruises on her legs from my kicking in the night. The sedatives made my kicking worse because I was pretty much doped to the point of coma and would not be aware that I was kicking her. Finally, when at one point she could not awake me and an ambulance had to be called, the doctor took me off these medications. Finally, his 3rd line of defense was, as it usually is, narcotic pain medication. I was hesitant to take these medications because of how habit forming they are, but when he started me on one vicodin per night at bedtime, this medication did wonders - for a month. Then it was 1 before bed, and 1 at 4:00 am to finish sleeping the night out. Needless to say, my body kept requiring more and more of this medication and I begged my doctor to take me off of it. He refused and said it was working. I switched to another doctor who specialized in sleep disorders and he took me off the vicodin and put me on Tussionex cough syrup. It is a much slower acting form of hydrocone than a pill with a 4 hour half life. Tussionex had a 12 hour half life, but in the end, it was still hydrocodone and wore off very quickly.

After researching RLS heavily on the web, I discovered that methadone is sometimes used in extreme cases such as mine. I was offered methadone by my first doctor when he first discussed narcotics but I refused because of the negative impression the word methadone gives people. Since I was offered it first I decided to try it. I went to a methadone clinic, and after being on hydrocodone for almost 3 years total, it was not difficult to fail a drug test. Methadone was the answer to all my problems and I never needed to take more. for the first time in over 5 years of trying different drugs, I was again sleeping a full 8 hours every night. This lasted for 3 months at a methadone clinic until the doctor requested an appointment and basically told me that I was not an addict and that I didn't belong there. He told me I was a person who did not need methadone to get off of another drug, but needed it for a continuing medical disorder and that I needed to seek treatment elsewhere as his time had to be devoted to actual people working on getting off heroine and the such. He referred me to a doctor, called the doctor personally and told him my situation and this doctor agreed to take me on. For the next year my new doctor kept me on the methadone, and instead of increasing the dose over time, I actually decreased it to the lowest minimum I can take without having my horrible RLS symptons start in again. I take only 30mg first thing in the morning. Then it's off my mind, and I sleep a full night.

My wife was transferred to Florida with her job and we now live in Fort Myers. I have to travel back to Ohio every 4 weeks to get a new prescription from my doctor because there isn't a single doctor here in the fort myers area, that I can find, who will at least even call my doctor and talk to him about my situation. I have gone to dozens, paid the co-pay only to have them walk in, see the word Methadone, on my paperwork and tell me: "I'm sorry, I won't prescribe methadone." I have looked into the local methadone clinic here, but unfortunately, I don't qualify there either. I do not abuse, nor misuse this medication. I take it exactly as prescribed by my doctor and have for well over a year now, but I'm having such a financial burden trying to fly or drive back to Ohio every 4 weeks to get my new prescription.

Are there any doctors out there who either live in the Fort Myers Florida area, or know of doctors in there, who would be willing to take me on as a patient and at least call my doctor in Ohio to discuss my case instead of just saying NO simply because they do not want to be involved with this medication? My doctor in Ohio, of course, can not keep prescribing me forever since I don't live there anymore, and I can't afford to keep going back to Ohio either, but for anyone with nightly RLS and the madness that comes with it, I'm sure you can all understand why the thought of having the one and only medication that works for me discontinued is a very scary thought.

If anyone has any suggestions or could refer any doctors who will at least listen to me, I would be eternally grateful.