Discussions that mention synthroid

Thyroid Disorders board


Well, I went to see the endo who specializes in thyroid disorders yesterday, and I really felt it went very well. He spent the better part of an hour talking with me. He answered every question, and I was very satisfied with his answers.

To start with he said he wants me on a level of synthroid that will bring my TSH down around 0.1 so as to suppress what small amount of thyroid tissue that remains after the near-total thyroidectomy. He and I have the same goal in regards to the TSH, just different reasons. Mine, because I think I'll feel better. His, because he wants to suppress thyroid tissue to prevent recurrence of papillary carcinoma.

I was also excited to hear him say he uses the new range 0.3-3.0 for TSH.

The day after surgery I was started on 100 mcg of synthroid. Took that dose for 4 weeks. TSH went from 1.563 to 2.792 in the 4 weeks. I was then increased to 150 mcg and have been taking that dose for about 7 weeks. When I told my ENT I thought I was still having symptoms of hypo, he referred me to this endo.

Well, anyway the endo ordered TSH and free T4 yesterday. I called today to get the results. I was amazed that my TSH is now 0.06, free T4 is 1.30. He did not order a free T3 (to my disappointment).

So, his instructions are to keep doing what I've been doing i.e. synthroid 150 mcg/day. That's great, except can anyone tell me why I am still so exhausted? He did say that some of how I'm feeling is due to still recovering from surgery. July 28? Would love to hear from any others who had thyroidectomy and how long after their surgery before they started feeling better.

I am scheduled to see my primary care physician next Tuesday for a routine follow-up. I'm going to ask her for more lab orders including free T3. Also will ask for CBC as I do tend to be anemic as I have a genetic blood disorder also which is called Beta Thallassemia Trait. No treatment for this condition other than cannot take iron supplements. Red blood cells won't utilize the iron. Pre-op my hgb was 11.2.

Also, just today picked up some selenium 200 mcg and folic acid 400 mcg to start taking. I'd kind of forgotten about the folic acid being helpful for the Thallassemia in the past. Besides those supplements, I already take calcium, vitamin E, vitamin C, and a multivitamin. Besides the Rx synthroid, I take wellbutrin 150 mg twice a day.

Also wanted to note I did talk to the endo about armour. He did turn his nose down to it immediately. He is an older doctor and he explained that years ago all they had to treat thyroid replacement with was natural thyroid. I'm sure you know how his explanation went. I personally have no problem taking synthroid if it can be proven that I am converting the T4 to T3. Thus, my request next week to have free T3 test.

I hope I haven't bored anyone, but any input as to previous experiences would be deeply appreciated. I just want my energy back. My list of symptoms is not large, the biggest complaint is the fatigue/exhaustion, frequent urge to yawn, and inability to lose weight despite diet and exercise. And, I am aware these symptoms could be the same for anemia. Also, one other thing, yesterday at the endo's office my blood pressure was high for me. It was 156/92. I have never before had blood pressure that high - my norm is 130/70. Any ideas?

Thanks in advance to any who reply. [img]http://www.healthboards.com/ubb/dizzy.gif[/img]

------------------
Pat
near-total thyroidectomy 7-28-03
Dx: papillary carcinoma

[This message has been edited by stormyrn (edited 10-17-2003).]
Thanks for the input IWL,
Yes, everything you've said is the same as what I've been finding as I research. Thanks for the reassurance of a doctor being able to order a free T3 even though it's not listed on the requisition. I do feel I have a very good PCP and am so hoping she'll be open to my request. Really think she will, but I'll find out for sure next Tuesday. She should have a letter from the endo by that time with his recommendation on synthroid dose.

BTW, you all are just great to respond with such support. Just not enough hours in the day to do all the reading on the board as I want to do. Thanks again.



------------------
Pat
near-total thyroidectomy 7-28-03
Dx: papillary carcinoma