Discussions that mention synthroid

Thyroid Disorders board


I'm 25 and have been dealing with hyperthyroidism for about 4 years...Ive been on PTU the whole time which has mostly regulated me but I still have these annoying symptoms: goiter, right eye bulging, panic attacks, cant build/lost muscle mass in arms/shoulders, hair loss (seems receding, wondered if the disease could work in this manner?)...I have 1 symptom that doesnt seem too common - when having these panic attacks my face, head and neck become flushed and I break out into these red blotches (feels like pins and needles)...My main doc has never heard of this as a symptom but another told me he has and said I'll never stop having them until the thyroid is removed...THIS ABSOLUTELY SUCKS!...Ive had 2 doses of RAI, each slowed my thyroid down somewhat but nowhere near killed it...I'm about to have surgery to just get this over with...Is this the way to go?...I must say I enjoy eating, and my T3 and T4 are in the upper-normal range, I havent gained weight which I want to KEEP that way...My TSH is still .01 which I guess means I'm still greatly hyper...My question is, after the surgery how long will it take to get regulated on synthroid and will I experience any signifigant weight gain and will I need to greatly curtail my eating habits?...Also, will the hair I lost grow back (if it was due indeed to the thyroid problem), and will my right eye stop bulging, and will I stop having these panic attacks where I get flushed and beat red?...HELP please.
Quote from diddy:
I'm 25 and have been dealing with hyperthyroidism for about 4 years...Ive been on PTU the whole time which has mostly regulated me but I still have these annoying symptoms: goiter, right eye bulging, panic attacks, cant build/lost muscle mass in arms/shoulders, hair loss (seems receding, wondered if the disease could work in this manner?)...I have 1 symptom that doesnt seem too common - when having these panic attacks my face, head and neck become flushed and I break out into these red blotches (feels like pins and needles)...My main doc has never heard of this as a symptom but another told me he has and said I'll never stop having them until the thyroid is removed...THIS ABSOLUTELY SUCKS!...Ive had 2 doses of RAI, each slowed my thyroid down somewhat but nowhere near killed it...I'm about to have surgery to just get this over with...Is this the way to go?...I must say I enjoy eating, and my T3 and T4 are in the upper-normal range, I havent gained weight which I want to KEEP that way...My TSH is still .01 which I guess means I'm still greatly hyper...My question is, after the surgery how long will it take to get regulated on synthroid and will I experience any signifigant weight gain and will I need to greatly curtail my eating habits?...Also, will the hair I lost grow back (if it was due indeed to the thyroid problem), and will my right eye stop bulging, and will I stop having these panic attacks where I get flushed and beat red?...HELP please

:eek: I am not a Dr. I don't even want you to think seriously about what I say except do more research...The web has some fantastic sites to visit to explain the thyroid, Hyper and Hypo.. I can just tell you my experience.
I am HYPO have been for 18 years.. gaining weight and fighting weight the entire time.. I used to have thick lushous shoulder length hair, now it is thinning horribly. It is dry and brittle. My skin is dry.. Panic attacks??? I have them too.. For me I dont think the thyroid has anything to do with it.. it is my whole life rolled up into a ball... don't rush to surgery a solution that can not be reversed. they can take it out but they can't put it back in. If you don't have enough answers from your ENDO.. change ENDO's.. your insurance cant forbid you from an important second opinion.
Good Luck. being ill isnt fun.
Panic attacks are most definitely a symptom of a thyroid disorder. The blotched patches sound like hives and again that is also a symptom. With the correct dosage and the correct med you will get your symptoms to go away, but be patient as it can take time. I was diagnosed in May and I have tried 2 different meds; the first one was synthroid (hated it), and the new one is Armour (a much better experience with symptom relief). I am still tweaking to get the correct dosage for me. You may gain weight and you might not, it depends on you, some people do and some people don't. The loss of muscle mass is a thyroid disorder complaint. Don't much with weight training until you get the dosage you need under control as it will only make things worse. In the mean time you may want to try aerobic activites. If I were you I would learn all you can about hypo so that you are a very well informed patient. Learn about the different meds that are available, synthroid isn't the only med available (but tell a doctor that!!) Good Luck to you.
hypodude,

why are u not regulated, r u on synthroid or anti-thyroid meds?...ive always been on the hyper side, but my T3 and T4 numbers are in the upper-normal range, its my TSH that is all f'd up at .01...I guess u can get these attacks whether you're hypo or hyper, or somehwere in between...

describe to me exactly what happens when you get these attacks, where and how often do they occur?...sometimes i can feel 1 coming on and am able to fight it off by calming myself down before it blows up...other times it's too tough to stop it at all and i get extremely hot and flustered, red blotches appear on my head and neck (feels like i have pins and needles like when your foot/arm falls asleep)...after a few minutes i'm able to calm down and the red blotches dissapear...other than the attacks, my worse symptom is the goiter (which isnt really noticable to others, but is to me, and the bulging in my right eye)...

I've always been an attractive, very relaxed and confident person, then i got this damn thyroid disease...i went from being a college basketball to a guy who had to quit when he lost all his muscle mass, and hasnt gotten it back since...not only did it ruin my engagement to my fiancee, but hinders alot of other parts on my life as well...it is truly ridiculous...it has affected me sexually and socially, i can't be myself basically, i'd get flair ups during class doing a presentation, talk about HORRIBLE...

The main reason im considering thryoid removal is that 2 doses of RAI did not work for me and one doctor told me the attacks will stop happening only if the gland is removed, others have said they do not know if it will stop them or not...i've never tried xanax or zoloft or any of that crap, i know nothing about it but i may look more into them.
I agree that you shouldn't rush into surgery. I had the RAI a couple of years ago and even though I feel better now, I regret having done that without having performed adequate research on alternative treatments. You are only 25 - you owe it to yourself to take it slow. Remember....whatever you do you are going to have to live with it for the rest of your life. I'm not so thrilled with the fact that I am going to have to take synthroid for the rest of my life.
Quote from diddy:
Skruss,


Is there anyone in here who has hyper/upper normal levels for a few yrs, then had the surgery?...I'm sure there is and my question to you is what happened with your weight immediately after getting the gland removed?


I am in your boat....euthyroid with medication. Have you ever heard of Methimazole or tapazole. It's supposed to be easier on the eyes and you don't take it but once a day. Just curious. I have my grave's undercontrol....blood level wise, but still symptomatic where I am considering the surgery too. Let me know if you get answers. I know many who have had their thryoids removed and didn't experience too much trouble getting regulated on synthroid. Also curious if your eye problems developed after your first dose of RAI??
Quote from diddy:
hypodude,

why are u not regulated, r u on synthroid or anti-thyroid meds?...ive always been on the hyper side, but my T3 and T4 numbers are in the upper-normal range, its my TSH that is all f'd up at .01...I guess u can get these attacks whether you're hypo or hyper, or somehwere in between...

describe to me exactly what happens when you get these attacks, where and how often do they occur?...sometimes i can feel 1 coming on and am able to fight it off by calming myself down before it blows up...other times it's too tough to stop it at all and i get extremely hot and flustered, red blotches appear on my head and neck (feels like i have pins and needles like when your foot/arm falls asleep)...after a few minutes i'm able to calm down and the red blotches dissapear....


I am not regulated as of yet partially due to anxiety and partially due to the fact that I tried taking my Synthroid meds twice already and felt like complete crap the next day. I got an endo appointment for January and hopefully I'll get it straight. As for what happens, well that's hard to explain. For me, the panic attacks definately come in waves and definately tend to breed more attacks. It will be like 2 months of attacks and somehow I manage to get through them and then I'll be fine for a few months until out of nowhere the next one sets in and I end up going through another round of attacks for a few months. I know that Im more prone to attacks during periods of my life that are particularly stressful. They mostly come on at supermarkets and at red lights while driving for some reason. Its like sometimes I feel extra-anxious and am more suseptible to them and sometimes I feel perfectly fine. I've even tested myself by trying to "induce" an attack on a few "good days" where I had no anxiety and didnt feel panicky and it did not work. They will usually come out of nowhere when they happen and they are difficult to stop once they get going. It feels like someone switched my Adrenaline button to "on" and left it there.

I've learned how to deal with them quite a bit being that I've never dies from one yet and have been having them for quite a few years now. The best way I usually catch them and stop them is by "staying in the moment". Try not to let yourself get caught up in thinking about them. Its very difficult I know but if you can somehow manage to engage your self in a conversation or anything that will take your mind away from the attack could help. At the supermarket, I've learned counting my money in wallet as rediculous as it sounds helps me a great deal while standing line - it gives me something to concentrate on.

I will tell you that one way NOT to go is by drinking to alleviate them (and yes, I've downed an entire bottle of Vodka at one point after an attack it was so bad and that certainly does not help - the next day at least) and by allowing yourself to become Agoraphobic - avoiding situations where you typically get attacks. You gotta nip that in the *** before it occurs if it hasnt already because you will find them more difficult to get over them then.

I know the panic attacks really stink. Try to think of the Adrenaline rush as something positive when they come on. Yell to yourself "bring it on!" and before you know it you put a positive spin on them and they go away. Weird and difficult to explain to anyone who doesnt get them but its part mental and part physical in my opinion. As for your college hoops and all the other "used to be's" - don't let that get you down further. Move on and deal with your problem. Think of it as a new chapter. I used to be the same deal - football player, hotshot stockbroker, weight lifter....adrenaline junkie believe it or not....pretty ironic. I actually used to think I shorted something out by tsaking too many weight lifting supplements in my life - I know a couple of ex-bodybuilders that get PA's. Good luck.