Discussions that mention synthroid

Thyroid Disorders board


Hi Karen,
I don't know anything - but I think I remember we both had this unusual shrinking of the thyroid goiters about the same time - I recognized myself in the mirror for a week! But mine is swelling again too...I will say that when all this was going on, I was rageful and hysterical and couldn't figure out why - and my pulse went up and I was so hot - constant upset stomach - many trips to the bathroom which was a sudden change from the usual trouble going at all - I thought maybe I was hyper too....I still don't know what happened or why - but now it's swelling again and I can feel it when I turn my head to the right - It was so nice for awhile not having something stuck in my neck! But I'm no longer hysterical or raging and my pulse is below 100 again....I was on 150 mcg of synthroid at the time - I actually lowered it myself during that period, but last week my endo lowered it to 137 mcg because ultrasound did show the nodules had shrunk - personally I don't think synthroid has anything to do with my nodules because I went from 1 to 7 while on it - but I do think it helps with my metabolism, some of the brain fog, and several of the other symptoms. I don't want to ever be without it as long as I have this malfunctioning gland! Hope you feel better....
Take care,
Kathy
PS One last thing - my TSH was never higher than 1.7 prior to treatment - I think it's a pretty useless test since I had a nodule causing all kinds of problems for about 2 years before an endo found it - everyone else kept saying your thyroid labs are normal...
Thanks Guys - This is helping me a lot too - Yes I have seven nodules - but no biopsy or uptake scan....I started with one nodule when I gained 60 lbs with normal thyroid labs. Since being on synthroid I have gone up to seven nodules - I am so happy yours has shrunk Karen! Even though it gives strange symptoms it's SO much more comfortable! I don't think mine is going to - I'm still convinced it shrunk due to two CT scans with iodine in three weeks time - but the docs say that wouldn't have been enough of a dose...

I have TMJ too - but fortunately it's been under control for some time - plus when I sleep I clench and grind and since I haven't been sleeping - not as much TMJ trouble! But lately I got ambien - usually it doesn't touch the insomnia but my doctor is letting me take it with klonopin (for restless leg syndrome) and I am actually getting some sleep and dreaming - unfortunately I feel even more fatigued than I did when I was only sleeping 2-4 hours a night (the last three years)....

It's very hard to work and I don't know if I can keep my job - I keep trying to scratch away - my boss is okay with me working from home SOME of the time, but not all the time....those days when I shower get dressed and the simple walk up to the office require that I lay on my office floor once I get there and rest up - needless to say any hope of productivity is when I work at home....

Glad your hubby understands - mine does too - he's been good to me through all this - even when I become raging b---h woman!

Yes in 2002 I couldn't go to the bathroom at all without ex-lax - they told me to eat more fiber! (Did we have the same doc?? Mine was male though) I also have IBS and fiber is like one of the worst things for it - so that didn't go well - at least they did every test imaginable and didn't find anything worse than reflux and hiatal hernia....the only thing that got me moving again was synthroid! -

And Sue - I too live in the south with extreme heat intolerance - I have all the hypo symtpoms except for being HOT and sweaty all the time - and my face is red and flushed and I prefer the A/C set on deep freeze (poor hubby)....I'm in Okla....

Best wishes to you all - will let you know about the ENT...
Take care,
Kathy
Karen,
Before my thyroid went bad I could eat and eat and not gain weight - always 117 lbs or so 5'3". THEN! All the sudden I gained 60 lbs - I was eating more than I used to really - I was having terrible cravings for doughnuts!! But I don't think even with all the doughnuts I could have eaten enough of them to gain that much that fast....I don't think I was really hungry either - just having cravings....I dont' know if I've ever really been hyper - that's the thing about my situation that makes me unsure of hashis - although maybe in the old days I was always hyper adn that's why I could eat and eat??? The only time I thought I might have been hyper was that couple of weeks ago when it shrunk and I was rageful and hysterical - my BP went up of course then, but my pulse didn't go up a whole lot - I think the resting pulse rates is one of the best ways to tell...even with my labs like I showed you on 150 synthroid, I haven't gone hyper that I know of....but then I have a lot of mixed symptoms so who knows...I am SO HOT!!! feel like I'm going to pass out waiting in a line at the store sweating to death....sorry to not be more help...Also the only time I was really sore was in Jan with the rapid growth - the rest of the time it's really been just pressure....kinda sore throat on the inside....
We have the same problem - it's so nice your husband and son let you do what you need to with the thermo - my husband has hypo and is cold - so I can't in good conscience set it to deep freeze when he's in the house! But whenever I can I do - I've always been hot even before my thyroid went bad - especially upon waking in the mornings - when I went on synthroid - that got better - I started to feel normal - like my internal thermostat was working right for the first time - I even got cold this winter! (we don't have much of one in Oklahoma - but still - what state are you in? - if you're comfortable saying)....that was something! But the last three or four months (since I got more nodules) I am hot again - too bad - just in time for summer - we have frequent 100 degree days here....
But, even when I'm hot, my feet are always cold - sometimes my hands too - weird....Sounds like your hubby is supportive!! That helps SO much!! My husband doesn't have nodules and really doesn't have many hypo symptoms - just the cold all the time thing - he can even lose weight!! Darn it! But he's been really supportive - sometimes I think he doesn't understand the fatigue and why I can't go backcountry hiking with him anymore - but he tries....and he knows I am trying - so we work on it together - he goes with me to some of my appts etc....
K
Hi Karen,
Yes - I get that - I have been having some edema with this thyroid disease....They wanted to put me on a diuretic - which I did for a week but I was so dizzy I quit it - how's your blood pressure? My ankles are swollen the last couple of days - today - superfatigue with headache! But it usually gets better later on...thanks for asking!! My BP was always 120/70 before the thyroid problem - since then - even on synthroid - it's gotten as high as 155/112 - that's when I notice the fluid retention most.....I've started to watch the salt intake as that makes it worse....
K