Discussions that mention synthroid

General Health board


I have Hashimoto's and am on Synthroid. I still do not feel well at 3.84 TSH, even though I was told I'm "normal" and even though I told them I have 1000 hypo symptoms still. I lost a lot of weight suddenly when the doc had me on too much Synthroid (I went down to 0.01 TSH), then when he took me off it for a month (he didn't handle it properly I've been told) I gained it back plus more (I was up to 8.34 TSH). I have heard some people can have hashitoxicosis or something like that, where they swing between hyper and hypo. Also some people go hyper when they start meds then are fine or go hypo again (at least that's what someone told me). My endo thought I had adrenal fatigue b/c of how I've fainted and had several colds that knocked me out like the flu (I had 8 prolonged colds from Dec-April). I also had all the symptoms I found on online sites. My ACTH test came back normal. Since then I've read that that test is not always the best, or the definitive one. So, I am confused.
All I know is that it takes a long time to feel normal again, especially depending on how long you've been sick.
I found a lot of books at the library - try Mary Shoman's books on the thyroid and autoimmune diseases.
Sorry I wasn't really any help.
GL!
Quote from ttc1asap:
I have Hashimoto's and am on Synthroid. I still do not feel well at 3.84 TSH, even though I was told I'm "normal" and even though I told them I have 10 hypo symptoms still. I lost a lot of weight suddenly when the doc had me on too much Synthroid (I went down to 0.01 TSH), then when he took me off it for a month (he didn't handle it properly I've been told) I gained it back plus more (I was up to 8.34 TSH). I have heard some people can have hashitoxicosis or something like that, where they swing between hyper and hypo. Also some people go hyper when they start meds then are fine or go hypo again (at least that's what someone told me). My endo thought I had adrenal fatigue b/c of how I've fainted and had several colds that knocked me out like the flu (I had 8 prolonged colds from Dec-April). I also had all the symptoms I found on online sites. My ACTH test came back normal. Since then I've read that that test is not always the best, or the definitive one. So, I am confused.
All I know is that it takes a long time to feel normal again, especially depending on how long you've been sick.
I found a lot of books at the library - try Mary Shoman's books on the thyroid and autoimmune diseases.
Sorry I wasn't really any help.
GL!

Hi , I was reading over your post..I suffer from hashis as well..Im still trying to fight the battle myself..Long journey I tell you learning everyday...anywho wanted to tell you..TRy and ask your dr to moniter your thyroid condition by your free levels..that is about the most accurate way to keep up with your hormones..
B/c like you had said in your thread hashis people swing... your TSH could be all over the place with a free t4 setting at .53 the very low end and you will feel like pooh <~~~just an example..But however going by yourt tsh alone now Id say you are still hypo.. From what Ive read and seen most people feel better with it around a 1 or under ..Plus if your not feeling well on synthyroid ask for another brand... not all but some actually feel really well on Armour thryoid b/c they like the t3 kick... Take Care