Discussions that mention synthroid

Thyroid Disorders board


I dont have a goiter but it has gotten visibly bigger, you can actually see a bump on both sides of my neck. Right now it is causing me to have unexplained headaches (mostly on the back of my head). I have a constant "tightening" in my neck like i'm carrying a weight around it, also intermittent pain in my entire neck, dizziness body aches (like i have the flu except no high temp), it feel at times like something is trying to burst out of my neck, i cant lie flat because i get air hunger. I've been on 100 mcg of Synthroid since july 21 & was feeling ok for a while. I do have Hashimoto's & probably still have the antibodies (that's what my dr told me last month) I am calling my dr tomorrow morning because i can't live like this any longer. The only energy i have is washing dishes & fixing meals (so long as it's not heavy duty) I cant even exercise and even though i'm still working just the thought makes me ill :confused: Need someone's opinion here, i would so appreciate it.
Quote from elmhar:
Hi Nymi,

Do you have a doc who is recommending removal of your gland? Have you been on meds only for one month? Is it possible your med dose is not yet adequate?

Best wishes.

Hi & thanks for replying! This is a new endo dr (as of July 21st) & yes she did mention removing my thyroid in the long run, but she didnt say it would be definitive. I tested positive for high antibodies (above 90) last May & thats when all my thyroid problems started. I was seeing an endo who eventually prescribed Levothyroxine at 25mcg with NO intention of increasing it (which after a while it NEEDED to be) I fired her at the end of last year & my primary dr raised it to 50. I was doing well for a while, then ran into problems this past April, when i had a gut feeling that i needed another increase & also my thyroid was slowly getting bigger. My new endo immediately switched me to Synthroid at 100 mcg & like i had mentioned I was feeling better but now I feel bad. Yes it is possible that my dose is not adequate. I was reading somewhere on some message forum that once thyroid hormone replacement (synthroid, levoxyl, levothyroxine, etc) doses go beyond 100 mcg that your thyroid is just about dead. I dont know if that is true.
Should you have surgery to remove your thyroid? That is a question only you, and a good doctor whom you trust, can answer. If you are feeling better, and it seems that you do, at least for awhile after an increase in meds, then you might want to just try controlling your symptoms with hormone (once you get to a dose that is adequate for you). Surgery has risks, as you know.

I made the decision to have my thyroid removed (which will be done tomorrow), after spending fully 3 years trying different thyroid meds, as well as doses. Absolutely nothing helped to even mitigate the symptoms which have caused me to be disabled and unable to work at all. I barely even am able to get dressed, and most days, don't. No matter at what dose, or what kind of hormone (synthroid, levoxyl, armour, cytomel, timed release T3), nothing helped the symptoms that have caused me to be unable to function.

Another reason I chose surgery is because of the high cancer risk - I have a cold nodule, my TPO antibodies are >25, 600, and my thyroglobulin antibodies are >1,000. My gland is severely inflammed, painful, and is primarily non-functional, but my body is mounting an attack that is making me feel like I have the world's worst flu - and have had, for 17 years. Still, it was NOT an easy decision.

If I could have felt even a little bit better just from taking thyroid hormone, I would have not thought about surgery at this point. For me, it seems to be my only hope to regain some semblance of health.

Good luck!

Ora
Quote from OraEtLabora:
Should you have surgery to remove your thyroid? That is a question only you, and a good doctor whom you trust, can answer. If you are feeling better, and it seems that you do, at least for awhile after an increase in meds, then you might want to just try controlling your symptoms with hormone (once you get to a dose that is adequate for you). Surgery has risks, as you know.

I made the decision to have my thyroid removed (which will be done tomorrow), after spending fully 3 years trying different thyroid meds, as well as doses. Absolutely nothing helped to even mitigate the symptoms which have caused me to be disabled and unable to work at all. I barely even am able to get dressed, and most days, don't. No matter at what dose, or what kind of hormone (synthroid, levoxyl, armour, cytomel, timed release T3), nothing helped the symptoms that have caused me to be unable to function.

Another reason I chose surgery is because of the high cancer risk - I have a cold nodule, my TPO antibodies are >25, 600, and my thyroglobulin antibodies are >1,000. My gland is severely inflammed, painful, and is primarily non-functional, but my body is mounting an attack that is making me feel like I have the world's worst flu - and have had, for 17 years. Still, it was NOT an easy decision.

If I could have felt even a little bit better just from taking thyroid hormone, I would have not thought about surgery at this point. For me, it seems to be my only hope to regain some semblance of health.

Good luck!

Ora

Yes Ora thats just how i feel, like i have the worst case of the flu despite having a low body temp of 97.6. I have no energy to do anything, my apt looks like **** & i cant even exercise (i think i mentioned that) along withmemory lapses.

I know surgery has risks---ANY surgery--however i think 17 years is far too long to wait to feel better and i know you have tried, so with that said i think You made a very wise decision. Tonight i was talking to someone on another board who said having her thyroid removed was one of the best decisions she ever made & has no regrets, i think the same holds true for you. Best of luck to you & keep us up-to-date.