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Addison's Disease board


Hi Val
Your situation sounds much like mine: years of problems including lack of appetite, weight loss, low blood pressure, low blood sugar, dehydration, etc. After going through several doctors, I happened on a good endocrinologist who tested my adrenal glands and found that I had Addison's. At first, they thought it was primary Addison's, but further testing revealed that it was secondary due to problems with my pituitary gland. I currently take 20 mg of Cortef and have been stable for about four years. I agree with Sarah that you need to find a good doctor, ask for an ACTH stimulation test, and then have your thyroid and growth hormone levels tested as well (both of these were virtually non-existent in me, and I currently take Synthroid and human growth hormone too). She is also right that untreated Addison's can be dangerous -- even life-threatening. Good luck, and let us know how you make out.