Discussions that mention tenormin

Rare Disorders board


when I was in my 20's I required alot of sleep, yet at night I would wake gasping for breath, then grow weak and pass out, go incontinet and when I came to I couldnt talk or explain myself for awhile.... If I got over tired Id literally fall on the couch feeling like I was gonna pass out.. I always knew when it was comming (just a feeling I would get)Almost like impending doom......In the day I would start to "pant" like I was in a race.. my pulse would be 160-180 sitting.......then would calm down..... Even when I got my "monthly" sometimes my heart would flop, and Id feel weak,,,, they put a holter on me and said its just PVC and gave me tenormin...They also found I had prolapsed mitral valve.......It helped. It continued to worsen, I became afraid to be alone with m y babies...Dr's said I didnt have any apnea, or severe heart problem, I was to young and that it must be panic attacks. To make a long story short they tried many anitdepresants on me.. saying "your depressed" I said I am now cuz you wont listen to me...

Then in my early 30's I was so distraut, my children would sleep on the floor next to my bed (thinking mom may die in the night) I went back to the dr. He sent me for a tilt table test... the dr. leaned back chatting, talking of deer hunting.. etc.. then all of a sudden it WAS HAPPENING.. Oh my God.. I yelled Im gonna go.. and Poof I was out...
when I came to' he said you will alwyas require a med.. in short your brain and heart dont work in sink?? I was unable to question him, as I couldnt talk right. Once home, I went back to my local Dr. who stated the same thing "your brain and heart dont communicate right".. I was nieve and didnt pursue it...and just took the pills. I then began to sleep semi proped up which seemed to make me not have as may episodes...
Well I have had many ups and downs, I still have trouble sometimes when I get my monthly, with weakness, heart flopping..and if I ever get the "flu" or food posening... its to the hospital for me.. for Ivs, and 02... I pass out....I have had to have the ambulance take me in..... I ALWAYS go incontinet.
I remember as a child running and waking up to my teacher over me saying are you ok? telling my mom I had lost my breath. I also remember waking' in the alley on my back and my bike lying next to me (I had been ridding it)..
The Dr that did the tilt table "I guess" didnt send a full report .. back then... and my local Dr. said he wasnt sure' if it had a name, just that I would always require a beta blocker....

So for the million dolla' question.... could this be what I have? Does anyone else relate.... should I see if I can get a referal to see a specialist? Im gonna go read this forum for more answers.. but just thought Id put this out there..... thank you!!! MattieJane