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High & Low Blood Pressure board


Hello All!!

I started yesterday weaning of my Toprol XL 25mg... It is HARD... I do not feel good at all -- I have a horrible headache, chest tightness, feel exhausted, and just 'unwell' -- can anyone that has gone off a Beta Blocker tell me how long I will feel like this, anything I can do to make it better?

Thank you all so much!

Vanessa
[QUOTE=Vanessa74;3416232]Hello All!!

I started yesterday weaning of my Toprol XL 25mg... It is HARD... I do not feel good at all -- I have a horrible headache, chest tightness, feel exhausted, and just 'unwell' -- can anyone that has gone off a Beta Blocker tell me how long I will feel like this, anything I can do to make it better?

Thank you all so much!

Vanessa


Hi Vanessa74,

Luckily, 25 mg is a very low dose. Most are taking from 100 to 250mg a day. (Can you imagine) I also weaned off TOPROL XL 25 mg. I split my tablet in half for 2 weeks (taking 12.5 mg a day) and then I split that for 2 weeks (approx. 6.25 or less) then I stopped completely. While I was weaning off the drug I felt a little anxious. When I stopped completely my heart felt like it was beating a little faster and harder for a couple of days. After a few days I was fine.

P.S. It is much harder to wean off these Pills when the dosage is high and you suffer from heart disease.
Hi - thank you both very much!!

I wish it was mild -- but I feel just HORRIBLE.. The headache is the WORST - I have had it now for two days and it is really getting to me. I feel tired and almost flu like. My head is punding, I have a hard time keeping my eyes open from the pain and I feel AWFUL... :(

Flower - how long did it take for you to notice an improvement in your breathing?

The Dr. wants me to try Diovan AGAIN - so that is what I am doing - I hate it though - gives me a tight fist like feeling in my upper chest ......

I am very angry with myself:mad: for letting him put me back on Toprol in the first place - I have been back on it now for about 39 days. I had only been completely OFF of it for 10 days when he had me go back on the low dose. Because my breathing wasn't better after those 10 days he said that it wasn't the Toprol doing it -- I asked if having been on Toprol for 4 years - maybe it took more time than that to get out of your system - he LAUGHED at me......

Could the Toprol make the GERD/Acid that I have worse too???

You are both right -- I need to try and remain positive. - thank you:)
How's your b/p? My husband went off a beta blocker that he was only on for one week. His heart pounded so much in bed that I could feel it.

I think you should go a little slower going off of it. It doesn't matter if you were on a smaller dose-some of us are more sensitive.

I'm sure Toprol can cause acid/reflux just as most of the beta blockers do.

It took me two months to get off of Clonidine & I was on the lowest dose. My b/p was constanly in the 200's.

You so have my empathy!!! We'll have to have a party for you when you get off of it :) Fam
Thank you both,

I am sure my B/P is probably pretty high - my Doc. said not to take it for a couple of weeks because I will just panic and FREAK OUT and it is probably just rebound from going off the Toprol. Because I am young and healthy - he tends to seem not too concerned about my high B/P????

I do seem to be 'hyper' sensitive to medication side effects - and this Toprol REALLY gets to me. I woke up @ 1:30am with my head hurting so bad that I could not even open my eyes - it kept me up for an hour -- the headache is the hardest part for me.

I guess I should get off it more slowly - just not sure how. I have 25MG tabs that I have been cutting in half -- what should I do instead?

I agree Flower - I think it is probably a 'combination' of the Toprol and the Acid/GERD stuff -- and maybe asthma too... I wish I knew... I'll just tackle one thing at a time. I have been keeping a journal of everything to see if I can find a pattern.

Thank you both for your help!
[QUOTE=Vanessa74;3417741]Thank you both,

I am sure my B/P is probably pretty high - my Doc. said not to take it for a couple of weeks because I will just panic and FREAK OUT and it is probably just rebound from going off the Toprol. Because I am young and healthy - he tends to seem not too concerned about my high B/P????

I do seem to be 'hyper' sensitive to medication side effects - and this Toprol REALLY gets to me. I woke up @ 1:30am with my head hurting so bad that I could not even open my eyes - it kept me up for an hour -- the headache is the hardest part for me.

I guess I should get off it more slowly - just not sure how. I have 25MG tabs that I have been cutting in half -- what should I do instead?

I agree Flower - I think it is probably a 'combination' of the Toprol and the Acid/GERD stuff -- and maybe asthma too... I wish I knew... I'll just tackle one thing at a time. I have been keeping a journal of everything to see if I can find a pattern.

Thank you both for your help!


Hi Vanessa,

I was on DIOVAN about 2 years ago. I also had side-effects after taking it for awhile. I was later switched to BENICAR which is the same class of pill.
I believe BENICAR is probably the best medication of them all. BENICAR lowers blood pressure for a full 24 hours and has proven better than lots of other meds. The most important thing about BENICAR is it is currently being studied to prevent MIGRAINE HEADACHES....... My doctor told me that if you cannot tolerate an ACE drug, BENICAR is probably the better choice. So far I am still on an ACE. If this should change, I will definitely return to BENICAR.....

P.S. I thought of BENICAR when you mentioned headache but this is only a suggestion...
Thanks JR22,

I will try and stay on top of this -- as I am 34 and do not want to spend years suffering trying med after med with side effects. I cannot WAIT to get this Beta Blocker OUT of my system.

My head hurts and I actually had to come home from work at lunch because I feel so awful -- one day at a time right!!!

Thanks for the information - sorry for your suffering. At times I wonder if the drugs are worth it -- so many of them seem to harm the body instead of helping it??? Its a toss up I guess.......

Hope you find something that works for you soon. I must say my B/P seems to gradually be getting higher the longer I am on Toprol -- ODDDDDD.....:confused:
Hi Everyone :)

Well - reading some of the posts about 'strokes' etc. scared me and so I went back on the Toprol.

The Diovan was giving me chest tightness and a cough. Trying to go off the Toprol gave me a horrendous headache for (3) straight days... So today I am on the regular dose. Even with my full dose my head still hurts and there is PRESSURE... Wonder how long it will take for that to go away :(

Not sure what to do -- I cannot be under 'hospital' supervision because my Dr. would never consent to that - plus I work and have (2) kids - so I cannot even go daily to the Dr. because I would lose my job.....

I am on my 4th dr in the past 3 years - so switching is not an option. He is not every really 'overly concerned' about my high B/P and the next med I have to try is a diruetic - which in the past has caused me chest tightness. He always just says - well your young and healthy, I'm not worried about it????

Well anyway - I got all scared about having a stroke or something - so back on the Toprol - and the breathing problems too I guess.

Thanks you all for sharing with me.... One of these days I will find the right drug for me :) :)
FG, I guess I wasn't clear. I didn't mean that every person who goes through withdrawal should be in the hospital. I was talking about the situation when the drug you are withdrawing from is causing an allergic reaction as well as a withdrawal reaction.

In that case, it might mean the difference between dying & living.

We each have to make up our own minds how serious the withdrawal symptoms are. In my case, if I get a headache then I know something is wrong because there is always a reason for my head to hurt.

Vanessa in your case, it sounds like you could withdraw slowly if you found another drug to replace toprol. Perhaps if you try HCTZ again if that's the diuretic you are considering, you might be able to tolerate it by going slowly.

I had what my Dr. called an allergic reaction to HCTZ, but am now able to take it. I figured out that it was probably the reaction to the dye in the drug not the active ingredient. I saw an allergist.

BTW I just heard the bird expert again on XM talking about how humming birds can't tolerate certain dyes either. So he said not to put any dye in the homemade sugar water for them. Guess I'm in good company :). This is similar to the story about some type of bird that miners would put in the mine before going in. If the bird died then they knew there wasn't enough oxygen in the mine for the mines to work.

I had the drug made up without the dye & slowly started it again. I started with 1 mg. Sometimes we can tolerate some drugs if our bodies have a chance to get used to them. In the new medical textbooks that I ordered, the Dr. warns other Dr's to go "low & slow with b/p meds" (just like Beth said). Some of our Dr's were sleeping though that class I suppose. Fam
[QUOTE=Vanessa74;3419992]Hi Everyone :)

Well - reading some of the posts about 'strokes' etc. scared me and so I went back on the Toprol.

The Diovan was giving me chest tightness and a cough. Trying to go off the Toprol gave me a horrendous headache for (3) straight days... So today I am on the regular dose. Even with my full dose my head still hurts and there is PRESSURE... Wonder how long it will take for that to go away :(

Not sure what to do -- I cannot be under 'hospital' supervision because my Dr. would never consent to that - plus I work and have (2) kids - so I cannot even go daily to the Dr. because I would lose my job.....

I am on my 4th dr in the past 3 years - so switching is not an option. He is not every really 'overly concerned' about my high B/P and the next med I have to try is a diruetic - which in the past has caused me chest tightness. He always just says - well your young and healthy, I'm not worried about it????

Well anyway - I got all scared about having a stroke or something - so back on the Toprol - and the breathing problems too I guess.

Thanks you all for sharing with me.... One of these days I will find the right drug for me :) :)


Vanessa,

TOPROL XL (make sure you ask for the BRAND name not a GENERIC)is not such a bad medication. Athletes and Even Musicians take TOPROL/PROPRANOL etc. to calm them and steady the nerves. I know alot of friends and family who've been on TOPROL/METOPROLOL for years without anything negative happening. My parents are in their 80's and have been taking TOPROL for years. It is a very proven and one of the most researched drugs. Get off of the DIOVAN but stay with the TOPROL if it makes you feel better. I know from experience that TOPROL has definitely helped me during times of Stress and Anxiety. It gave me a sense of calm, less headaches and a calmer heartbeat.

P.S. In the future when you feel less stressed (and stronger) or when you feel more comfortable with another medication, you can once again try and taper the dose, but for now it sounds like you feel more comfortable being on TOPROL.
Hi Ace,

Thank you for the information and the encouragement!!

I wish I could stay on the Toprol - because I HATE - HATE changing medications and trying to find the right one. However, since October, 2007 - the Toprol has been causing me breathing problems that have become pretty severe lately.

My Pulmonologist wanted me OFF Toprol in October - but my Primary Dr. disagreed - so my dosage was dropped from 50mg to 25mg (which IS NOT helping my B/P at all at this point) - was told to add Diovan 80mg - which my Primary Doc. now knows I cannot tolerate - so told me just to keep taking the Toprol - even though he KNOWS I am having breathing issues.

Says its anxiety - gave me Lexapro -- NO HELP WITH THE BREATHING OR THE HBP....

So at this point - I need to get off the Toprol - no matter how hard it is - because in my opinion its much WORSE to not be able to breath properly....

I am so glad that you have found the right combo for you - I am sure I will too given some time!!

THanks :)
I'm not sure yet if my combination is working, I have not been on this combination long enough yet. I also have to go for a blood pressure check next month to see if my blood pressure is lower. All these pills are trial and error.

P.S Are you taking a Generic TOPROL or the brand drug. The generic drug is called "METOPROLOL XL" the brand drug is call "TOPROL XL". This may make a difference because recently TOPROL went generic.. I've read many posts that claim the new generic is not the same as the brand drug. People do not feel the same as they have with the brand drug.
Hi Ace,

I hope this new combination works well for you - switiching meds is not fun...

I am on regular Toprol XL -- I was switched to the generic (for just 20 days in October, without my knowledge) - that was when all this WEIRD stuff started happening. I was switched back right away - but it was too late :(
[QUOTE=Vanessa74;3425601]Hi Ace,

I hope this new combination works well for you - switiching meds is not fun...

I am on regular Toprol XL -- I was switched to the generic (for just 20 days in October, without my knowledge) - that was when all this WEIRD stuff started happening. I was switched back right away - but it was too late :(


Vanessa,

It appears that we sometimes run out of options.. The FDA and many medical journals are reporting that we should go back to the old days and prescribe only a low dose (cheap) diuretic. They claim that this is the most effective strategy for most with HBP. They are finding that many people are being prescribed expensive brand name drugs that seem to lower HBP but are causing numerous side effects and have not proven any more effective (in the long run) to cheap diuretics.