Discussions that mention tylenol

Amyotrophic Lateral Sclerosis (ALS) board


Thanks for asking. my dad passed away on January 1 2008 in the morning. the 2 weeks or so prior to his death, he was very weak and bed ridden. he failed very quickly.

his voice was weak, and reduced to an almost muted grunt. he could slightly move his fingers and toes. he couldnt shake his head. it only twirled. he couldnt even hold it up.

my dad lived with my sister for the last 10 weeks of his life. in the last 2-3 weeks of his life, she had to move every him every time he had an itch or was uncomfortable. sometimes this took hours. literally. my dad opted not to have the feeding tube installed and not to have the trac. in his throat. he did have a suction machine to help suction the saliva since he couldnt swallow it and choked. that was the most wonderful thing my sister said.

the last weeks, hospice became involved. they provided the "comfort pack" it has small amounts of pain relivers. starting with tylenol and moving up the scale. my dad didnt live long enough to need more than a small amount of morphine every few hours. he would even refuse the meds.

my dad was a vibrant full of life man who loved to be a big shot. he was reduced to a 130 pound skeleton or shell that had a thin layer of skin draped over him.

but he had his full mind. or as much of a mind that one can have after being trapped inside himself for all of these months with little ways of communicating and facing death. not being able to clean yourself or feed yourself. having your full mind and all your faculties is just a terrible thing. i remember the week before my dad died, i sat next to his bed as he was trying to fall asleep. i cried. i tried so hard not to. he pretened to be asleep. cracking his eyes to see me. then he started to shed tears. he tried to tell me something. i rubbed his head, told him i lvoed and said to go to sleep. i sat with him for a long time. just holding his hand. he looked every few minutes for a while to confirm to h imsef i was still there. he just did not want to be alone.

make peace now. and allow yourself to grieve. there are 7 steps and we must all go through them to properly grieve the loss and carry on with our own healthy lives. we'll all grieve in our own ways. but grieve.

i am however grateful that my dad did not have to stay in this cage of a body for a great deal of time. just days before he died, he said he wanted so badly to die. he couldnt take it any more. (of course this took a great deal of time to get out.)

my sister made a chart of the alphabet on a piece of cardboard. when my dad could no longer move his hand himself, my sister would move the board andmy dad would wiggle his finger over the letter he wanted. after a few words you could just about figure out what he wanted. this was much less frustrating for him and all of us who tried to talk.

good luck and just remember that you're not alone in this. we are all here too!!