[QUOTE=Nenu;3617281]Cherie, you were also dx'ed at 31?
My biggest 'symptom' is proving to be burning mouth. 2 neuros so far figure brain stem lesion. If that's just suspicion or truth, I'm not sure, I never saw my MRIs. I could go back searching if I really wanted, but as my neurologist said, what's on the MRI doesn't matter at this point (number of lesions etc). What matters is the dx and following with the drugs.
I only take a max of 500mg of Neurontin (Gabapentin actually, the generic) and 10mg of Amitriptyline for the burning mouth. Plus my Copaxone, and OTC drugs (Tylenol) for headache.
I'm not sure where the lesion would be for a burning mouth. From the notes I've kept, "the neurological functions located in the brainstem include those necessary for survival (breathing, digestion, heart rate, blood pressure) and for arousal (being awake and alert). It is the pathway for all fiber tracts passing up and down from peripheral nerves and spinal cord to the highest parts of the brain."
I have heard of people with facial numbness, similar to Bell's Palsy (which can occur from MS), with the only known lesions in their brain. :confused:
The upper spinal cord influences the following:
C1: blood supply to the head, pituitary gland, scalp, bones of the face, inner and middle ear, sympathetic nervous system, eyes, ears
C2: eyes, optic nerves, auditory nerves, sinuses, mastoid bones, tongue, forehead, heart
C3: cheeks, outer ear, face, bones, teeth, trifacial nerve, lungs
C4: nose, lips, mouth, Eustachian tube, mucus membranes, lungs
C5: vocal cords, neck glands, pharynx
C6: neck muscles, shoulders, tonsils
The numbness I've had in my face included a numb mouth, tongue, lips . . . and on other occasions, the top of my head and tips of my ears. Last time they checked, I had a large lesion in the C2-C3 region, which seems to make sense for my symptoms.
I think the max they will rx of Naproxen is 750mg X 2 per day. Basically that is just three Aleve @ 250mg each. When I have a lot of inflammation, I will start with 1000 mg of Naproxen, take 500 mg the second time that day, then 500mg twice a day after that. A person should be monitored when using anti-inflammatories at that dosage, and they shouldn't take them for long periods of time. I've been using them several years, with no bad effects, so my doc rx's 100 at a time to me (and manages when I need another rx). I don't like taking meds though, so I use them sparingly, EXCEPT when it comes to the back pain. That is all that I use get me through the day though.