Quote from suzyshop1:Cleopatra could you be so kind as to tell me what symptoms you were experiencing when you were diagnosed with pbc?Also what tests did your doc run to diagnose you with pbc?Is pbc a termimal disease or can it be controlled thru meds.Any info will be greatley appreciated.Take care.
well suzy I had a lot of things going on at the same time, I also have chiari's which wasn't diagnosed at that time either. So my doctor was desperately trying to find out what was wrong, my liver enzymes at that time weren't elevated, they were thinking things like lupus, ms etc when they did an ANA test it came back negative, but something showed up some kind of staining and they suggested he do an AMA test and a couple other tests the others were negative but the AMA was positive.
I had been extremely tired and weak, just wanted to sleep, pain in the right rib cage area, nausea. Those are what we believe were from my liver, but I had a ton of other symptoms we believe are from the chiari's. but some are hard to differentiate.
PBC from what i've learned can be a very slow progression for some people and they die of old age not the pbc, or for others it progresses much quicker. they have urso to try and slow it down, some eventually need a liver transplant. I was to the doctor today and my enzymes are up so I have to go back to the gastro man, my creatinine kinase is low funny aye I haven't a clue what that means and didn't think to ask my family doctor but I will ask the gastro man when I see him hahahha.
I hope that helps.