Discussions that mention valium

Brain & Nervous System Disorders board

I feel your frustration. I have survived breast cancer two times and was told that the MRI on my spine looked like it had spread to Stage IV. After a year and a half of MRI's, CAT scans, blood work, you name it at MD Anderson Cancer Center in Houston, TX. They finally said, we can't find any cancer. It sorta looks like it, but it's not definitative. So they said to go to a neurosurgeon. I went to him and he said there was nothing he could do. Go see a pain specialist and get on a morphine patch. I went to the pain specialist and he said he didn't think that I had been properly diagnosed yet. He thought it was muscular because I was having extreme muscle spasms all over my body. He referred me to Dr. Mavis Fujii, who did a full neuro exam and blood work and immediately said that she knew exactly what it was. Stiff Person Syndrome. As a matter of fact, she co-authored a paper in the New England Medical Journal that explains in detail and also about a chemo that she and another doctor worked on. But it cost about $25,000-$30,000 a month. But she's is an expert in this field and is sooooo knowledgeable about it. She didn't paint a very pretty picture of it. She was very honest. I'm on Vicoden, Valium and Lyrica and it has totally eliminated the spasms. I'm tired a lot and I take the meds as needed. Some days are better than others. I'm losing more and more use of my legs as she said I would. I sleep alot. But if I sleep for a couple of days, then I can get up and have a good day. But at least i know what I'm dealing with. This article is very informative.
Here is a link to the article and the work and research that Dr. Fujii has done.