Quote from jonathanp:yeah on fairly bad days or when i feel really tired i try to go for short walks. On good days i go for longer walks. Thats about it at the moment. I go driving too to get me out of the house when i feel up to it. Its so unpredictable though how your going to feel from morning to afternoon to evening. Can be fine in the morning, go for a walk and then be really worn out in the afternoon, and come alive at night again.
i cant remember if i told you guys but i went to see the ENT again the other day. he is going to send me for some balance tests, and then to consultant who specialises in post-viral illnesses, as the ENT and the neurologist both think its not a balance problem, but some kind of post-viral illness, i.e. fatigue or even possibly ME. In the meantime i am waiting for a letter from London to confirm an appointment too.
Ive had it rough again this week, with my ex girlfriend and her Dad throwing punches at me. Great i really need that.
Then i find out i have a bladder infection, and a cist down below. So i have gotta go for ultrasound etc just to be on the safe side. more worries.
what have i done to deserve all this? Everyone says they feel so sorry for me, because im one of the nicest lads they know, so why is all this coming my way. its so not fair. Like i dont have enough to worry about with this illness on its own. Im fed up.
Back to struggling with busy places again, after i had a good few days last week. Had a nightmare mother's day meal at a busy restaurant. Had to keep going outside for fresh air because of anxiety - embarassing.
Im seriously considering taking some anxiety controlling pills, so if anyone can give any further advice about these could you please post here i.e. which ones do what, side effects, what they can do for me, what they have done for you.
Hang in there bud. You're life seems like a mixed bag at this point, some good and some bad, which is certainly better than ALL bad. You will crawl out of this. Soon enough, especially since you're seeing docs and trying to narrow causes down, there will be more good days than bad and then you'll look back on this as one of those times in life (we all have 'em) that tested you and hopefully made you stronger, or at the very least, taught you something about yourself. That's what life is all about.
When I was at about the 5th month, my doctor prescribed Xanax (an anti-anxiety drug), which I took for about a month. She told me it worked to block/dull some of the brain's response to the inner ear, though to tell you the truth I think she also recommended it because I was completely wigging out because no one could tell me specifically what was wrong with me. She put me on a very small dose, .25 mg every 6 hours, and within a couple days of taking it, it did make me feel better, though after a month I felt it wasn't really doing that much (no appreciable further change in anything), so I went to an ENT for a specialist opinion. He took me off the drugs immediately because he said long-term use hinders the brain's ability to compensate. So right he was. But, I will say that for just those 4 weeks it did help me to calm down a bit and focus. You might want to talk with your doctor about a similar type of drug, and perhaps something that is non-addictive, which Xanax can be. I never had a problem with that though, because I took it for such a short time.
Hope that helps. Like I said, hang in there! You will get better. Life is so worth it.
Oh, PS, I did not suffer any side effects from the Xanax.