Discussions that mention xolair

Allergies board


ttddttdd, ( what do the letters stand for anyway? ). You and I are defantly in the same boat and we both want off. I go back to a Dermatologist the 13th and will let ya know what I find out. I probably know more than he does. My regular Dr. says I am way ahead of her on this hives stuff. I know more than I ever wanted to know, that is for sure. I stopped taking the Sulfasalizine the last weekend of November and am getting more hives everyday. The last few drugs that are left on the list of things to try since I have done everything else is all the risky, more aggressive treatment that is fairly new. Not sure if my insurance will cover either.
My next step will possibly be........plasmapheresis, cyclosporin, methotrexate, or intravenous immunoglobulin. None of them sound like much fun and I absolutly hate needles. I would like to try the new anti-IgE medicine called Xolair but it is only approved for allergic asthma. I think it will be a huge help in the future for people like us and it may also be approved someday for peanut allergies too. My little girl is severly allergic to nuts, and my son has asthma, so that is good news to me too.
I believe that the hives are comming from my body that is in overdrive for no reason like an auto-immune disorder and the IgE is going crazy. In other words...IgE tells immune cells to release histamine. Histamine is a chemical that starts allergic reactions. Histamine may bring on symptoms such as coughing, wheezing, nasal congestion, hives and swelling.......... Anti-IgE attaches to IgE in the blood. This prevents the release of histamine and the IgE allergic reaction. Sounds like a great thing to me! So the medicine I am thinking might help me now is suppose to work in the same way by telling my blood to do the right thing. Kinda confussing but after reading so much about blood and mast cells, IgE, IgG. I actually understand this stuff but it is hard to explain.
I will let ya know what I find out. I can tell ya this though. If this Dr. doesn't help me I will find someone who can. I refuse to live the next 10-20 years like this.
Quote from HAIRDOER:
ttddttdd, ( what do the letters stand for anyway? ). You and I are defantly in the same boat and we both want off. I go back to a Dermatologist the 13th and will let ya know what I find out. I probably know more than he does. My regular Dr. says I am way ahead of her on this hives stuff. I know more than I ever wanted to know, that is for sure. I stopped taking the Sulfasalizine the last weekend of November and am getting more hives everyday. The last few drugs that are left on the list of things to try since I have done everything else is all the risky, more aggressive treatment that is fairly new. Not sure if my insurance will cover either.
My next step will possibly be........plasmapheresis, cyclosporin, methotrexate, or intravenous immunoglobulin. None of them sound like much fun and I absolutly hate needles. I would like to try the new anti-IgE medicine called Xolair but it is only approved for allergic asthma. I think it will be a huge help in the future for people like us and it may also be approved someday for peanut allergies too. My little girl is severly allergic to nuts, and my son has asthma, so that is good news to me too.
I believe that the hives are comming from my body that is in overdrive for no reason like an auto-immune disorder and the IgE is going crazy. In other words...IgE tells immune cells to release histamine. Histamine is a chemical that starts allergic reactions. Histamine may bring on symptoms such as coughing, wheezing, nasal congestion, hives and swelling.......... Anti-IgE attaches to IgE in the blood. This prevents the release of histamine and the IgE allergic reaction. Sounds like a great thing to me! So the medicine I am thinking might help me now is suppose to work in the same way by telling my blood to do the right thing. Kinda confussing but after reading so much about blood and mast cells, IgE, IgG. I actually understand this stuff but it is hard to explain.
I will let ya know what I find out. I can tell ya this though. If this Dr. doesn't help me I will find someone who can. I refuse to live the next 10-20 years like this.

The letters are just something I threw in quickly to check out these boards. I never imagined that I would find people who could really relate to what I am going through. It is really great to have people who understand to be able to share information with. I am going to read more about the anti-IgE. I really believe it is an auto-immune thing. Let us know how the new meds are working. Happy Holidays!