Quote from ladyrmx:My spasms are like small seizures on my arm & trembling. They've progressed and when it gets really bad even my leg trembles.
It does work, but I've grown dependent on it. I suggest if you could live without it (medication). GREAT.
If it's really that bad that impairs your ability to present presentations/ public speaking. Then, ask your doctor.
Last year, I got a dosage upgrade (which is bad) but I really needed it. I stood home for a 2 weeks, because I couldn't do anything without some that medication. They put me on Zanaflex (which got me really sleepy) & Baclofen (which didn't work at all).
Currently, I'm thinking about Botox, maybe that'll help.
Yes, it is an anti-anxiety medication, and it relieves me from any anxiety I might have. When I take it early ( ex; when I go to a club) , they make me feel so relaxed, I feel free and SPASTIC-FREE. My friends thought I had a few drinks or something.
Well, this just goes to show that syptoms of anxiety can increase spasticity and vice-versa. Not sure about your tremors but if I were to venture a guess I would say the same thing holds true. The Klonopin
take care of both symptoms.. This is where we can get into the whole chicken and egg story but I'd rather not. :)
Out of curiousity, do you notice that your level of spasticity/tremors get worse when you're nervous or anxious?
I have heard Klonopin
can be addictive. Never ventured to try it but I have tried ativan
, which is essentially in the same class of drugs, it's not bad at calming my nerves and reducing anxiety but I now almost exclusively use a positive (rational) thinking approach to aliviate stress.
In regards to Botox
, I've tried them both.. I was on Baclofen
for about 2 years as a matter of fact.. When I told my doctor that I got no measurable results, she was insistent on raising the dosage which I did and to no avail.. I eventually gave up on it altogether. The only positive was a didn't experience the most common side effects of drowsiness and lethargy. Then again I didn't reap any benefits either ;)
My view on Botox
is mixed.. I got a round of injections in my left calf last year to reduce spasticity and help with the common "flat foot" issue. Didn't really notice any improvment right off the block.. In a couple of days I had a presistant pain in my foot that got worse the more weight I put on it.. This lasted for about a week and then from what I can gather there weren't any notable differences pre-Botox
. Right now I'm still considering giving it a second chance.. I have an apointment with the Doc next month. I know a few posters here have written about some favorable results.
[QUOTE]No, I've never had surgical releases, the doctors have never told me about that. What is the name of the exact surgery, so that I could ask my doctor. Thanx
From my experience, orthopedic surgeons these days are pretty weary in recomending adults with CP (generally anyone over about 14) for any type of
tendon lengthening or surgery in general.. Their primary concern is pain driven and if you tell them that you're not in pain and you just want to improve your stance/balance etc. They brush you off like a bad sales proposition. I would only recomend trying this route once you've gone through all the other options.