Discussions that mention zanaflex

Cerebral Palsy board


Hope25,

I have to chime in here and tell you to live it up girl! You can do anything you want to!!! Believe me you can. I feel like part of me wrote what you have posted because I have been in your shoes.
I have mild L spastic hemiplegia and I am 40 years old. (did I just admit that) :) Anyway, I have had the very same experience of looking like the average person at a counter and then when my hand shakes when I hold something out people just have to have their comments! Sometimes it is my head that will start shaking a bit.....I call it my parkinsons moment. When they give me the "where did that come from" I look at them and very seriously say "the muscles in my arm, of course". It is nice to have the upper hand.

I get nervous too and hold my breath continually. I am always being told by someone to "breathe". This too can get better over time when you start feeling better about everything around you, and you will.

Now I don't think anyone has a more troublesome mother than I. I won't go into detail, but she avoids me at all cost because she dislikes me very much.
I was a mistake in her eyes and ruined her life as I was so often told. I say was because I just don't let it get to me anymore. It takes a while to do these things, but they can be done. I don't think your mom is in the same category as mine (don't get me wrong) but she did manage to make my childhood rather miserable.

Now..........maid of honor..........you go for it! I did it two summers ago for one of my good friends. I made sure my botox appointments were aligned with the wedding, and I held on real tight to the guy that I was walking with.
As a matter of fact, I had to wear these sandals with no backs and that just isn't possible in my book on a regular day so......I literally taped the shoes to my feet so they would stay on for the walk down the aisle! I kid you not.
It worked and the whole thing went well.
If you talk yourself out of it then you may miss a wonderful opportunity. Your friend knows that you have CP right? Then if she wants you there at her wedding then she thinks you can do it and doesn't care what others may think. What a wonderful friend this person must be.
You do your best and that is all anyone can expect you to do. Speaking from experience, it will make you feel so good when it is all done. I sang a song all the way up the aisle. I fixed a spot to look at and kept my attention focused.

Now something that may help. I just started taking zanaflex this past weekend. What a great med! It really works! It is a muscle relaxer that is pretty mild but highly effective. Might want to check with docs about that. It can have some side effects so I would try it well before the wedding if that is something that you might want to do.

Do keep me posted. When is the wedding??
Hang in there! Life dishes out its bad times, but you have to know that there are good things out there too to hold on to. Take as many of those good chances as you possibly can!

You can do it!

Lastramy
Quote from lastramy:
Hope25,

I have to chime in here and tell you to live it up girl! You can do anything you want to!!! Believe me you can. I feel like part of me wrote what you have posted because I have been in your shoes.
I have mild L spastic hemiplegia and I am 40 years old. (did I just admit that) :) Anyway, I have had the very same experience of looking like the average person at a counter and then when my hand shakes when I hold something out people just have to have their comments! Sometimes it is my head that will start shaking a bit.....I call it my parkinsons moment. When they give me the "where did that come from" I look at them and very seriously say "the muscles in my arm, of course". It is nice to have the upper hand.

I get nervous too and hold my breath continually. I am always being told by someone to "breathe". This too can get better over time when you start feeling better about everything around you, and you will.

Now I don't think anyone has a more troublesome mother than I. I won't go into detail, but she avoids me at all cost because she dislikes me very much.
I was a mistake in her eyes and ruined her life as I was so often told. I say was because I just don't let it get to me anymore. It takes a while to do these things, but they can be done. I don't think your mom is in the same category as mine (don't get me wrong) but she did manage to make my childhood rather miserable.

Now..........maid of honor..........you go for it! I did it two summers ago for one of my good friends. I made sure my botox appointments were aligned with the wedding, and I held on real tight to the guy that I was walking with.
As a matter of fact, I had to wear these sandals with no backs and that just isn't possible in my book on a regular day so......I literally taped the shoes to my feet so they would stay on for the walk down the aisle! I kid you not.
It worked and the whole thing went well.
If you talk yourself out of it then you may miss a wonderful opportunity. Your friend knows that you have CP right? Then if she wants you there at her wedding then she thinks you can do it and doesn't care what others may think. What a wonderful friend this person must be.
You do your best and that is all anyone can expect you to do. Speaking from experience, it will make you feel so good when it is all done. I sang a song all the way up the aisle. I fixed a spot to look at and kept my attention focused.

Now something that may help. I just started taking zanaflex this past weekend. What a great med! It really works! It is a muscle relaxer that is pretty mild but highly effective. Might want to check with docs about that. It can have some side effects so I would try it well before the wedding if that is something that you might want to do.

Do keep me posted. When is the wedding??
Hang in there! Life dishes out its bad times, but you have to know that there are good things out there too to hold on to. Take as many of those good chances as you possibly can!

You can do it!

Lastramy


Hi Lastramy,

What can I say, it sounds like we're exactly the same! First off, I was so sorry to hear about the relationship with you mother. I guess I never had it THAT bad but she expresses herself in similar ways, I don't know if that was clear. I guess they have their own complexes. My mother has very low self-esteem, moreso b/c she was brought up in a poor environment where they didn't have much, and in a society where "girls" weren't thought to accomplish much except bear children, and be married of course. I can't really say my mother is bad, but I guess she never "learned" to deal with my problem in a positive way. As a result, I think this is why I too, tend to have low self-esteem regarding this issue, which I now characterize more "psychological" that "physical"

Yes I agree, I have to start living! I mean, I do hope to get married, have children, etc, but I sometimes think that might not happen and it upsets me! I've been also told I think TOO much about everything!

As far as the wedding, I was thinking too far ahead! My friend isn't engaged yet! But she expressed to me that she wants me to be her Maid of Honor when the time comes. Believe me I just started shaking! I don't want to ruin the wedding! There I go, thinking all crazy... :( I have to stop this. I guess it was just one of those bad days....I have to live lif, I know. I hope I'm not sounding too much of a bore. I think I'm just posting too much about the psychological effects of my "problem." I think you all probably think I'm nuts!
Well, I try not to be believe me....