Discussions that mention zonegran

Epilepsy board


Hello - new to this Board - so glad to be a part of this group! I had my first seizure in April 2004 - I woke up on the floor at my sister's house to find my whole family and some very good looking firemen standing around me. The next one I fell on my kitchen floor and busted my head open - ER trip No. 2. I had approximately 5 more seizures. Trileptal didn't work at all. Now on Lamictal. Anyway I went 11 months with no seizures and in the past 4 months I've had 8 or 9 - had another one last night.

My seizures are unusual because they ALWAYS occur in the evening between 7:00 and 10:00 p.m. I have stopped driving at night because I don't want to take a chance. Luckily I have been home for the majority of them. I just go completely out cold and wake up never realizing I have had a seizure. The "post ictal" aftermath is horrible. I'm wiped out for 2 days and I just feel yucky. My first EEG in 2004 was normal. The second in December 2004 was abnormal. Saw my neuro last week - they have upped my dose of Lamictal to 600 mgs. a day and he started me on Zonegran too. He said he hated to have to have me on 2 meds but it's obvious the seizures aren't going to stop. I am having an MRI this weekend and we'll see what that says.

My biggest problem is that I lost my job because of this. I am a paralegal and had previously worked for this firm many years ago. By chance, I happened to be asked to come back again and they were thrilled. I started in January - I have never missed a day of work - even after having the seizures - and was called in at the end of May and told I was being "let go". When I asked why, I was told "non performance of work and mistakes". This is the FIRST time I was ever told this. In my heart I know it's because of the epilepsy but they obviously can't tell me that's why they're letting me go. I worked my butt off at this job so "non performance" is just not true. Since then, I've been job searching but my neuro is telling me to hold off for awhile until we do some more tests.

I'm depressed! I want to take some classes and do some volunteer work but am afraid to start because if I get the green light to go back to work I won't be able to finish. I'm really trying to keep myself up but it is hard! I really appreciate any support anyone can offer. Thank you.
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