Discussions that mention zonegran

Epilepsy board


NO! GET TO THE DOCTOR RIGHT AWAY!!! THERE IS A WARNING LABEL OUT ON DEPAKOTE (TRUST ME I KNOW - CUZ I WAS ON 1500 MG'S A DAY!) IF YOU ARE THROWING UP - YOU NEED TO GET OFF OF IT NOW BECAUSE IT IS CAUSE YOUR PANCREAS TO BE INFLAMED BADLY. i WENT THROUGH THIS 2YRS AGO. IT STARTED WITH PAIN RIGHT ABOVE MY GAL BLADDER WHICH I THOUGH WAS BAD ACID REFLUX OR HEARTBURN BUT THEN BEGAN THROWING UP ALL MY FOOD! I MEAN EVERYTHING I ATE! WENT TO THE DOC. AND THEN WAS PUT IN THE HOSPITAL TO FIND OUT EXACTLY WHAT WAS GOING ON. WELL, IT WASN'T MY GAL BLADDER. HAVE THEM DO SOME BLOOD WORK ON YOU TO CHECK YOUR LYPASE & AMYLASE LEVELS. I BET THEY ARE HIGHER THAN THEY SHOULD BE.
THEY WILL GIVE YOU PAIN MEDS. IF YOU ARE HAVING THE SAME PAIN I DID BECAUSE IT HAD PROGRESSED WITHOUT ME KNOWING IT. PEOPLE PUT ON THIS TERRIBLE DRUG CAN DEVELOP PANCREATAS AFTER ONLY BEING ON IT FOR 2 WEEKS NO MATTER WHAT MG'S YOU ARE TAKING. MY DOCTORS TOLD ME THAT IF I DIDN'T CHANGE SEIZURE MED'S I WOULD DIE. YOUR PANREAS BREATS DOWN ALL THE FAT IN THE FOOD THAT YOU EAT AND WHEN IT IS INFLAMED, IT DOES'T ALLOW THAT PROCESS TO HAPPEN. YOU WILL ONLY GET WORSE. THEY WILL PUT YOU ON A TEMP. DIET OF ZERO FAT: LIKE JELLO AND REALLY REALLY SUPER LOW-FAT FOODS LIKE RICE AND MASHED POTATOES WITH NO BUTTER AND NO GRAVY AT ALL. VERY BLAND DIET UNTIL YOU ARE ABLE TO NOT THROW IT UP. I HAD TO EAT LIKE THAT FOR A MONTH OR SO. I WAS DRINKING CARNATION INSTANT BREAKFAST TO GET THE VITAMINS AND MINERALS I WAS SO LACKING AND WAS UNABLE TO WORK FOR ABOUT A MONTH WITH DOCTORS ORDERS OF COARSE. I AM STILL EXPERIENCEING PAIN ONCE IN A WHILE & WHEN I DO - I KNOW THAT I NEED NOT TO EAT SPICY FOODS, STEAK WHICH IS THICK MEAT AND IS VERY HARD TO BREAK DOWN & DIGEST PROPERLY. ONCE YOU CAN EAT JUST WATCH YOU FAT INTAKE ON PRETTY MUCH EVERYTHING YOU EAT AT FIRST AND SLOWLY YOU WILL RETURN TO NORMAL - PLEASE DON'T IGNORE THIS!!! I BEG OF YOU. GET TO YOUR DOCTOR NOW!! THEY SHOULD KNOW OF THIS SIDE-EFFECT. YOU WILL COMPLETELY BE TAKEN OFF RIGHT AWAY AND PUT ON SOMETHING NEW. IT REALLY SUCKED FOR ME BECAUSE IT IS KNOWN AS ONE OF THE BEST SEIZURE DRUGS OUT THERE WITH THE LEAST SIDE EFFECT AND DOES THE ABSOLUTE BEST AT CONTROLLING PARTIAL SEIZURE AS WELL AS GRAND MALS AND SO ON. MOST SEIZRE MEDS. CAN'T REALLY CONTROL THE PARTIALS AS WELL AS THIS ONE AND A GOOD NEUROLOGIST WILL TELL YOU THIS. I HATED THE FACT THAT I HAD TO GET OFF OF IT BECAUSE I LEAD A PRETTY MUCH NORMAL LIFE ON IT FOR 14 YRS. I GUESS I WAS A ODD CASE BECAUSE IT TOOK THAT LONG TO AFFECT ME. THEY WERE BAFFLED BECAUSE MOST PEOPLE GET IT LIKE SAID WITHIN 2 WEEKS OF BEING ON IT. I HAVE BEEN GOING THROUGH HELL TRYING TO FIND THE RIGHT MED. FOR ME SINCE. I DON'T RECOMMEND ZONEGRAN OR TOPAMAX BECAUSE THEY CAUSE SVERE APPETITE SUPPRESSANTCY. I DIDN'T WANT TO EAT MY FAVORITE FOODS EVEN IF IN FRONT OF ME. IT HAS BEEN HARD BUT I WOULD TRY LAMICTAL - YOU WILLEAT ON IT BUT A WORD TO THE WISE. ALL THESE NEW DRUGS COME WITH SIDE AFFECT LIKE ANXIETY SO THEY WILL MORE THAN LIKELY AUTOMATICALLY GIVE YOU A ANTI ANXIETY MED TO MASK THE SIDE EFFECT FROM THE SEIZURE MEDICATION. HANG IN THERE. BUT DO GET TO THE DOCTOR A.S.A.P. - GET THE HELL OFF THAT DRUG NOW. ALL YOU NEED TO DO IS CALL HIM AND TELL HIM THE SYMPTOMS YOU ARE HAVING AND HE/SHE SHOULD KNOW RIGHT AWAY AND SHOULD WASNT TO SE YOU TO CHK. LYPASE AND AMYLASE LEVELS. IF THEY DON'T YOU BETTER MAKE THEM DO IT. WHEN I WAS GOING THRU THIS, I WAS GETTING MY LEVELS CHECKED WEEKLY TO SEE HOW I WAS PROGRESSING BUT MAY NOT BE AS BAD AS I WAS BUT IF YOU R ALREADY THROWING UP YOUR FOOD, I BET YOUR IN A BIT OF PAIN TOO. ALL THEY WOULD GIVE ME WAS ALL THE PERCASET I WANTED TO MANAGE THE PAIN UNTIL IT WENT AWAY AND I WAS MINDING MY :NO FAT DIET" BELIEVE ME: IF YOU TRY TO EAT FOOD WITH FATIN IT BEFOR YOUR SUPPOSED TO, YOU'LL KNOW AND YOU MAY NOT THROW UP BUT IT HURTS RIGHT AWAY. EVEN WATER CAN SOMETIMES HURT. WHAT DO YOU EXEPECT? YOUR PANCREAS IS INFLAMMED BADLY. GOOD LUCK TO YOU. MY HEART IS WITH YOU ON THIS BECAUSE IT WAS A REAL STRUGGLE IN MANY WAYS FOR ME. TAKE CARE AND DO WHAT I SAY PLEASE.....

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