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Posted by Lynda on April 03, 2000 at 12:38:08:

In Reply to: Looking for answers, 3 yr. old having siezures posted by Sherri on March 21, 2000 at 23:32:44:

: My 3 yr. old son started having siezures in Jan. 2000,
: when i found him he was lying lifeless on the floor staring into space and he had thrown up, he was in this state for about 15 min. He threw up a few more times while in this state. The hospital admited him overnight and ran a cat scan, spinal tap, chest x-ray, and blood tests all which came back normal (of course no EEG!!) exactly 3 weeks later he had another one, this time when i picked him up he was stiff, and again threw up several times,he did not stay still though he limped up, eyes again were wide open and staring and he was again none responsive, He stayed in this state for over an hour until the hospital used medical intervention to bring him out of it. he was admited and stayed for 2 day's, this time they did an EEG and it showed alot of siezure activity. He was on dialantin but he was seen at Children's Hospital for another EEG a month later and it showed he was prone to siezures and they also changed his med. to tegretol
: 3 times a day. They did not tell me what kind of siezures he is having and that is what i want to know.
: I would like to find others who have children with siezures to talk to.
: If anyone has had a similar experience and have a pretty good idea what kind of siezures he is having i would like any info.
: Thanks
: Sherri
: [email protected]
Reply: Hi. I have 4 children. My last to children Nick, and Julia both started having the exact and I mean exact same seizures at the age of three! They only have mild EEg disturbance. They too have long seizures, Nick maxed at three hours. They have been on dilantin, tegretol, depekote, topomax. They only have seizures maybe once or twice a year. Both at developmentaly delayed by approximently two years. Please email me. I want to contact you. I would have to write many pages to discuss what we have found. But I think we figured it out. To make a long story short, Both kids do not metabolize proteins properly, their urinary amino acid levels were severely dificient, proper neurotransmitter level were at the severely deficient levels ie. no seizure control. Their fatty acid profiles showed severe aberations. this also implicates neurologic disorders. Call Dr. Patricia Kane, a biochemist in Millville New Jersy . Her company if Body Bio Center. Just call information that can give you the phone number. She is a specialist in epilepsy, autism and learning disabilites. She can peg the nutritional imbalance that is causing the abnormal EEg and seizures. Don;t waste time. We lost 5 years on Nicki until we found her. God Bless and good luck.

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