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Posted by Anna on July 24, 2000 at 16:45:09:

In Reply to: Unexplainable seizures. posted by Salma on February 28, 2000 at 22:53:34:

: I've always said I have a mild case of epilepsy but I have never really been diagosed with anything. I've had the EEG's done the cat scans the MRI's and they always come out normal. They use to tell me it was a chemical reaction but never really give me a straight answer. I am taking medication for it but I would like to know if anyone has gone through the same sorta situation.

: Let me know
: Thanks

Neurologists are taught in general that if they don't see a specific, easily identifiable cause for a seizue i.e. drug interaction or reaction, fever, head injury etc., that the seizure is the diagnosis. My tests MRI's and EEG's are normal, but I have grand mals once a month is I am off medication. If you are seizure free on the medication that is great since many people have trouble controlling their seizures. I was in the same situation as you and after taking the medication for 2 years I decided to stop taking it to see if the seizure was a "fluke". Unfortunately, it wasn't. I had another one so back on the meds I went. You can "test" your medication to see if you need it or if you stay seizure free. However, I would recommend working with a doctor to do this mainly because some meds must be "stepped down" or the withdrawal itself can trigger a seizure and second your drivers license may be suspended due to a loss of consciousness report being submitted to your state DMV. Doctors are reluctant to let you stop taking meds that are "working" and feel that any potential side effects from the meds are better that risking a seizure that you may or may not have. As for a clear diagnosis, doctors are not interested in making one. Epilepsy is unfortuntely most often diagnosed with only the seizure itself and little or no follow up testing. The seizure is your diagnosis. (I wish I could tell you how much I hate to give you that answer, but it's the truth. I know my seizures are hormone related since they come mid cycle every month like clockwork, but the medical establishment wants to treat, not investigate.) I understand your situation and wish I could answer better. All the best, A

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