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Posted by Lisa on September 18, 1999 at 22:36:57:

In Reply to: INQUIRY ON EPILEPSY posted by cENTENARY HOWARD on August 12, 1999 at 08:35:14:

I was diagnosed 2 years ago with a seizure disorder and have been successfully treated with Tegretol. I the event of a seizure, I EXPECT someone to tell me what has happened. After a seizure, I am a little disoriented but know that something has happened and I cannot imagine someone withholding that kind of information from me. It is my body and my health and more business. Your sister needs to know everything about the seizures...any information she gains from bystanders can later on help her neurologist in treating her. Having a seizure disorder is stressful in itself....but you learn to live with that stress and to deal with it. To me it would be much worse not knowing exactly what has happened. Good luck to your sister in her treatment of this disorder.



: My sister was diagnosed a week ago to have epilepsy. The cause however
: has not yet been established
: The problem is that when she gets a seizure, she cannot remember later
: that she has had one. Therefore if we didn't tell her she will never
: know that she has had a seizure, she will only feel weak and keep
: wondering what happened. She is currently on Tegretol.

: My question is that is it advisable for us to tell her that she has had
: a sizure or it may stress her and lead to another. The fear is that she
: may star to think that the medication is not working and develop more
: fear and stress which could lead to a seizure. Non the less, she always
: wants to be told when she has a seizure. So far her reaction when she is

: informed is fine; she seems to take it lightly. Could this change in the

: future or would it be helpful for her to know exactly what her condition

: is.

: Please Advise!

: Centenary Howard

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