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Posted by Mi on January 17, 2000 at 08:43:12:

In Reply to: Blood tests. posted by RWJ on January 03, 2000 at 02:38:52:

I don't take Dilantin or phenobarbitol, but I am now taking 2 meds, of 10 that I have tried in the last 18 months. My Doctors don't want blood levels unless I have siezures and they want to incress the meds. The blood levels are taken to see if I am reaching toxic levels!! My doctors understand that I pay for everything out of my pocket and if it is not needed to keep me out of the hospital, you know oops we increased the meds to toxic levels and now she is in the hospital. Talk to your Dr and have him explain WHY it needs to be done!! There might be a reason that he has not explained to you. Keep the lines of comunication open with your doctor, or get one that you can talk to. Good luck!! It is tough when you have to pay for all of this and you are not sure what it is for!!

: I began taking Dilantin in 1967 and a few years later my doctor added phenobarbitol. After about ten years, lung cancer killed my first doctor. My second doctor continued witht the same medications and dosages. I was having an average of 1 seizure every 3 years and was told that was very good control. Neither my first or second doctors EVER said I needed blood tests. Then my second doctor retired. The third doctor insisted I have a test, even though I told him I just didn't have the money. Still he insisted. Everything was just fine. Two years later he insisted I have another test. Then it went to 18 months, then every year. Then he retired. The first time I saw the fourth doctor, I was told I'd need a test every 6 months, even though every test I had taken in the past was ok. I put up somewhat of an arguement and got the new doctor to go from 6 months to once a year. I have a battle with the bill collectors trying to collect for the tests. I would like to know how often others get tested. Do the makers of Dilantin and phenobarb suggest anything about testing?

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