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Posted by Elaine on November 06, 2000 at 20:35:32:

In Reply to: Hello! posted by Linda D. on November 06, 2000 at 16:32:19:

Linda, I just happen to have FMS and work for a law firm. One of the lawyers I work for does nothing but Social Security cases, so I'll pass along some tips in the hope they help. I don't know whether you have an attorney or not, but either way, this is still good stuff to know. First and most importantly, make sure that your medical records (as far back as possible) are part of the Social Security Administration's record on you. Secondly, and extremely important, I hope your doctors have completed what is known as an RFC, or Residual Functional Capacity, form. This form lists the doctor's opinion as to your ability to do work-related activities such as sitting, standing, walking, lifting, bending, etc.. The SSA must give a great deal of deference to the opinions of treating doctors, and I hope your doctor has completed one. I don't care if someone goes to five doctors, if they can at least get a couple of forms in there to support your position, more power to you! When you put these forms completed by your treating doctors up against those of the SSA's doctors (who sometimes haven't even met you but simply review what medical records are in your file), this can only be helpful. Some doctors charge an outrageous fee to complete the form; others, luckily, care about their patients and complete them. I hope you have a judge that is sympathetic to FMS. Last year, the Social Security Administration deemed that FMS was a "medical determinable impairment". I think the ruling was SSR 99-2p. Keep in mind that it may still be quite a while after the hearing before you learn whether you received a favorable decision, so hang in there! Anyway, hope this helps you. Best wishes!

: I just found this message board, and it seems there is a good group here who post messages and replies on a regular basis. I've tried several others and either there are a couple of friends who only talk to each other or no one posts anything for weeks at a time.
: I was diagnosed with FM more than 10 yrs. ago. That was back when there was not very much info to be found. I had a hard time trying to find out what it was and what it was all about. As you all know, it's all over the place now.
: One thing I have learned is that it's different for everybody. Different pain, stiffness, mental and emotional symptoms. Another thing I've learned is that the older I get, the harder it is to function. I am now 51 years old, marrried, with three adult children and a 14 yr. old. I had a career in geriatric nursing and loved it. I worked myself up from an aide to a RN, from there a floor nurse, then Assistant Director of Nursing, to Director of Nursing to Manager of a large Rest Home. I had to quit working about 4 years ago due to my inability to keep getting up and going to work, work all day, then come home and function as a "live person". For these past 4 years, things have gone steadily downhill. I can't do much of the housework, can't do much shopping or walking or sitting or lying down.In fact, there is not much I can still do without a great deal of pain and fatigue. Everyday is the same, yet different. I have problems in almost every muscle in my body. Also, I have pain in my joints. I am totally exhausted after getting up and getting dressed.
: I am in the process of trying to get disability from Soc. Security. It has been a long, hard, humiliating process of doctors who no nothing about this problem, psychiatrists who know even less, and the people in our Social Security program who will do anything to make you quit trying. I go for my hearing before an administrative judge on the 13th. It has taken over 1 year to get this far, and I understand that after the hearing, I'll have to wait at least 6 months to get the judge's decision.
: Is anyone having a problem with Social Security? If so,what else can I expect?
: Thanks for listening!

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