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Posted by Al on December 11, 2000 at 11:19:22:

In Reply to: Question directed to AL...... posted by missinglynx on December 10, 2000 at 20:40:17:

: : : I have been suffering from severe, ongoing joint pain for the last few months and sleep disruption (seems like forever). Have been to an internist, ENT, neurologist, and now have an upcoming appt. with a rheumetologist. The general consensus is that it is fibromyalgia. Any advice before the rheum. appt. regarding best treatment, pain relief, or specific questions to ask would be appreciated. Many days it feels like I can't tolerate it for one more moment. It's debilitating and depressing. It's as though normal life is just slipping away. Is there anything hopeful in the future in terms of symptom management or resuming a quasi-normal life. Have been given Celebrex and Vioxx with negligible affect. Thanks for any and all input.
: : Dear friend: My heart goes out to you: when I first came down with Fibro, I was terrified and worn out being shuttled from one doc to the next in an HMO that moved with all the speed of a pregnant dinosaur. Make sure this rheum. really believes that Fibro is a physical problem, not a head trip. Also: is he/she willing to provide you with whatever pain meds you need: Celebrex and Vioxx are worthless for Fibro pain. I use Ultram for manageable pain, and Vicodin for breakthru pain...If yoour dr is stingy with the meds, get another dr. While Fibro can't be cured, it can be treated, and you will be better! My prayers are with you, Al [email protected]

: Hello there AL. That was an excellent Post. Can you fill me in on why Vioxx and Celebrex are not useful of this kind of Pain. I exercise alot (6 times a week) and I am looking for a medium strength Pain Reliever. Man I get so "sore" one day after. I could scream out loud. What family are the ones you recommend. I know about Vicodin... that might cause me too much disorentation.... How does it work for you. Keep healthy and hopefully go in remission

To the lynx! Celebrex and Viox are anti-inflammatories. However, despite popular misconception, Fibr is not an inflammation of the joints. Ultram is pretty good for intermediate pain--Vicodin as one of the opioids can make some drowsy(as you know, how we react to meds is so individual! I have a friend taking 3000mg of Neurontin and smiling, while I take it and yawn!). I exercise too and it is probably the most therapeutic thing I do. Keep your chin up...God bless, Al

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